Show simple item record

dc.contributor.authorBall, Lauren
dc.contributor.authorJansen, Sarah
dc.contributor.authorDesbrow, Ben
dc.contributor.authorMorgan, Kate
dc.contributor.authorMoyle, Wendy
dc.contributor.authorHughes, Roger
dc.date.accessioned2017-07-06T02:50:21Z
dc.date.available2017-07-06T02:50:21Z
dc.date.issued2015
dc.identifier.issn1446-6368
dc.identifier.doi10.1111/1747-0080.12107
dc.identifier.urihttp://hdl.handle.net/10072/158310
dc.description.abstractAim: To explore the perceptions of family carers of people with dementia, with emphasis on feeding-related challenges, burden of care attributable to nutrition support, and practical strategies developed to address these challenges. Methods: A descriptive exploratory qualitative study was undertaken using semistructured interviews from a sample of 14 family carers of non-institutionalised individuals with dementia living in Queensland, Australia. Interviews explored carers' perceptions of feeding and nutrition support, associated burden and strategies applied to address nutrition-related challenges. Interview transcripts were thematically analysed using open-coding and triangular analysis. Results: Family carers described a range of feeding and nutrition challenges experienced, including physiological, cognitive, emotional, functional and/or behavioural challenges. Carers described the strategies they used to address feeding challenges, which sometimes contributed to carer burden. Family carers felt uninformed and unsupported with respect to nutrition-related care by health professionals. Loss of food intake, weight loss and wasting were reported to be sources of considerable anxiety for the family carers. Most family carers reflected that their experiences of nutrition care had been difficult and a significant component of overall burden of care. They developed a range of practical strategies to address feeding and nutrition challenges, including supervising mealtimes, avoiding disagreements over food, and providing regular snacks and finger foods. Conclusions: Family carers feel unsupported and uninformed with respect to nutrition-related care of individuals with dementia. Health professionals need to enhance the support and education provided to family carers, including recommending low-risk strategies that have been tried and tested by experienced family carers.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherWiley-Blackwell Publishing Asia
dc.publisher.placeAustralia
dc.relation.ispartofpagefrom22
dc.relation.ispartofpageto29
dc.relation.ispartofissue1
dc.relation.ispartofjournalNutrition & Dietetics
dc.relation.ispartofvolume72
dc.subject.fieldofresearchFood sciences
dc.subject.fieldofresearchNutrition and dietetics
dc.subject.fieldofresearchPublic health
dc.subject.fieldofresearchcode3006
dc.subject.fieldofresearchcode3210
dc.subject.fieldofresearchcode4206
dc.titleExperiences and nutrition support strategies in dementia care: lessons from family carers
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
dc.description.versionAccepted Manuscript (AM)
gro.facultyGriffith Health, School of Public Health
gro.rights.copyright© 2015 DAA. Published by Blackwell Publishing Ltd. This is the author-manuscript version of the paper. Reproduced in accordance with the copyright policy of the publisher. The definitive version is available at www.blackwell-synergy.com
gro.hasfulltextFull Text
gro.griffith.authorMoyle, Wendy
gro.griffith.authorDesbrow, Ben


Files in this item

This item appears in the following Collection(s)

  • Journal articles
    Contains articles published by Griffith authors in scholarly journals.

Show simple item record