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  • Out of sight, out of mind? the inclusion and identification of people with intellectual disability in public health research

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    WarePUB1398.pdf (1.081Mb)
    Author(s)
    Brooker, Katie
    van Dooren, Kate
    Tseng, Chih-Han
    McPherson, Lyn
    Lennox, Nick
    Ware, Robert
    Griffith University Author(s)
    Ware, Robert
    Year published
    2015
    Metadata
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    Abstract
    Aims: Adults with intellectual disability experience substantial health inequities. Public health research aiming to improve the lives of this population group is needed. We sought to investigate the extent to which a sample of international public health research includes and identifies people with intellectual disability. Methods: In this systematic review, we examined a select number of public health journals to determine (1) how often people with intellectual disability are explicitly included in randomised controlled trials (RCTs) and cohort studies and (2) how the presence of intellectual disability is identified and ...
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    Aims: Adults with intellectual disability experience substantial health inequities. Public health research aiming to improve the lives of this population group is needed. We sought to investigate the extent to which a sample of international public health research includes and identifies people with intellectual disability. Methods: In this systematic review, we examined a select number of public health journals to determine (1) how often people with intellectual disability are explicitly included in randomised controlled trials (RCTs) and cohort studies and (2) how the presence of intellectual disability is identified and reported. Results: Among eligible articles in these selected public health journals, it was found that cohort studies passively exclude people with intellectual disability, while RCTs actively exclude this population. Most general population articles that explicitly identified people with intellectual disability did so through self-report or proxy report and databases. Conclusions: A more extensive and adequate evidence base relating to the health of this overlooked population group is needed. A useful first step would be for researchers specialising in intellectual disability to identify how we can best assist mainstream researchers to include and identify people with intellectual disability in their population-level studies.
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    Journal Title
    Perspectives in Public Health
    Volume
    135
    Issue
    4
    DOI
    https://doi.org/10.1177/1757913914552583
    Copyright Statement
    © Royal Society for Public Health 2014 SAGE Publications ISSN 1757-9139 DOI: 10.1177/1757913914552583
    Subject
    Public Health and Health Services not elsewhere classified
    Public Health and Health Services
    Publication URI
    http://hdl.handle.net/10072/172277
    Collection
    • Journal articles

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