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dc.contributor.authorEagleson, Karen J
dc.contributor.authorJusto, Robert N
dc.contributor.authorWare, Robert S
dc.contributor.authorJohnson, Susan G
dc.contributor.authorBoyle, Frances M
dc.date.accessioned2017-10-31T01:54:33Z
dc.date.available2017-10-31T01:54:33Z
dc.date.issued2013
dc.identifier.issn1034-4810
dc.identifier.doi10.1111/jpc.12296
dc.identifier.urihttp://hdl.handle.net/10072/172338
dc.description.abstractAim: To determine whether, in children with congenital heart disease (CHD), disease severity is associated with health-related quality of life (HRQOL) and impact on the family. Methods: Cross-sectional, single-centre study comparing HRQOL outcomes of age and sex matched children with hypoplasia of the left ventricle (HLV) (n = 31) and tetralogy of Fallot (n = 29) was performed in Queensland, Australia. HRQOL was assessed using generic and disease-specific components of the Paediatric Quality of Life Inventory Measurement Model (PedsQL). Intra-diagnostic age group comparisons of HRQOL were examined. Impact of CHD on families and parental HRQOL was assessed using the PedsQL Family Impact Scale. Results: Child and parent-proxy reporting indicate children with HLV have significantly lower overall HRQOL than children with tetralogy of Fallot across generic domains of HRQOL (P < 0.0001), with significantly lower scores in physical (P < 0.0001) and psychosocial (P < 0.0001) health domains. No significant difference in child reporting across domains of the Cardiac Module is evident. Parent-proxy reporting indicates significantly lower scores on the symptom scales for children with HLV (P < 0.001), with greater cognitive problems (P < 0.02) and perceived treatment anxiety (P < 0.01). No significant differences in HRQOL were identified between age groups. HLV has a greater overall family impact, with significantly lower parental HRQOL (P = 0.0001) and family functioning (P < 0.0001) summary scores. Conclusions: The more severe condition of HLV is associated with poorer HRQOL in some domains and has greater impact on parental HRQOL and family functioning.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherWiley-Blackwell Publishing
dc.relation.ispartofpagefrom856
dc.relation.ispartofpageto864
dc.relation.ispartofissue10
dc.relation.ispartofjournalJournal of Paediatrics and Child Health
dc.relation.ispartofvolume49
dc.subject.fieldofresearchPaediatrics and Reproductive Medicine not elsewhere classified
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchPaediatrics and Reproductive Medicine
dc.subject.fieldofresearchPublic Health and Health Services
dc.subject.fieldofresearchcode111499
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1114
dc.subject.fieldofresearchcode1117
dc.titleHealth-related quality of life and congenital heart disease in Australia
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
gro.hasfulltextNo Full Text
gro.griffith.authorWare, Robert


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