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  • Recognising the "forgotten man": Fathers' experiences in caring for a young child with autism spectrum disorder

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    PaynterPUB2828.pdf (116.3Kb)
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    Accepted Manuscript (AM)
    Author(s)
    Paynter, Jessica
    Davies, Michael
    Beamish, Wendi
    Griffith University Author(s)
    Paynter, Jessica M.
    Year published
    2018
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    Abstract
    Background Despite decades of research on family adaptation in relation to caring for a child with an autism spectrum disorder (ASD), the wellbeing of fathers remains poorly understood. Method The present study sought to investigate experiences of fathers of young children with ASD aged between 2½ and 6 years attending an ASD-specific early intervention centre. Eighteen fathers initially completed a mailed questionnaire and 8 of these fathers were then interviewed by telephone. The questionnaire included standardised measures assessing constructs of the double ABCX model of family adaptation. The interview used open-ended ...
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    Background Despite decades of research on family adaptation in relation to caring for a child with an autism spectrum disorder (ASD), the wellbeing of fathers remains poorly understood. Method The present study sought to investigate experiences of fathers of young children with ASD aged between 2½ and 6 years attending an ASD-specific early intervention centre. Eighteen fathers initially completed a mailed questionnaire and 8 of these fathers were then interviewed by telephone. The questionnaire included standardised measures assessing constructs of the double ABCX model of family adaptation. The interview used open-ended questions to understand the experiences of fathers’ involvement in caring, sources of support, and coping strategies. Results Fathers experienced elevated levels of parental stress and elevated depressive symptoms. Interviews deepened understanding of fathers’ personal experiences of each component of the double ABCX model. Conclusions Findings from this study provide further insight into the fathering role and demonstrate the utility of the double ABCX model as a framework for exploring their experiences. The need for further research to explore practical implications to better support fathers is discussed.
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    Journal Title
    Journal of Intellectual & Developmental Disability
    Publisher URI
    http://www.tandfonline.com/doi/abs/10.3109/13668250.2017.1293235
    DOI
    https://doi.org/10.3109/13668250.2017.1293235
    Copyright Statement
    © 2017 Taylor & Francis. This is an Accepted Manuscript of an article published by Taylor & Francis in Journal of Intellectual and Developmental Disability on 28 Feb 2017, available online: http://www.tandfonline.com/10.3109/13668250.2017.1293235
    Note
    This publication has been entered into Griffith Research Online as an Advanced Online Version.
    Subject
    Clinical sciences
    Social work
    Social work not elsewhere classified
    Sociology
    Publication URI
    http://hdl.handle.net/10072/341238
    Collection
    • Journal articles

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