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  • Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: a systematic review

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    Accepted Manuscript (AM)
    Author(s)
    Flynn, Samantha
    Vereenooghe, Leen
    Hastings, Richard P
    Adams, Dawn
    Cooper, Sally-Ann
    Gore, Nick
    Hatton, Chris
    Hood, Kerry
    Jahoda, Andrew
    Langdon, Peter E
    McNamara, Rachel
    Oliver, Chris
    Roy, Ashok
    Totsika, Vasiliki
    Waite, Jane
    Griffith University Author(s)
    Adams, Dawn M.
    Year published
    2017
    Metadata
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    Abstract
    Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were ...
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    Mental health problems affect people with intellectual disabilities (ID) at rates similar to or in excess of the non-ID population. People with severe ID are likely to have persistent mental health problems. In this systematic review (PROSPERO 2015:CRD42015024469), we identify and evaluate the methodological quality of available measures of mental health problems or well-being in individuals with severe or profound ID. Electronic searches of ten databases identified relevant publications. Two reviewers independently reviewed titles and abstracts of retrieved records (n = 41,232) and full-text articles (n = 573). Data were extracted and the quality of included papers was appraised. Thirty-two papers reporting on 12 measures were included. Nine measures addressed a broad spectrum of mental health problems, and were largely observational. One physiological measure of well-being was included. The Aberrant Behaviour Checklist, Diagnostic Assessment for the Severely Handicapped Scale-II and Mood, Interest and Pleasure Questionnaire are reliable measures in this population. However, the psychometric properties of six other measures were only considered within a single study – indicating a lack of research replication. Few mental health measures are available for people with severe or profound ID, particularly lacking are tools measuring well-being. Assessment methods that do not rely on proxy reports should be explored further.
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    Journal Title
    Clinical Psychology Review
    DOI
    https://doi.org/10.1016/j.cpr.2017.08.006
    Copyright Statement
    © 2017 Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (http://creativecommons.org/licenses/by-nc-nd/4.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, providing that the work is properly cited.
    Subject
    Psychology not elsewhere classified
    Psychology
    Publication URI
    http://hdl.handle.net/10072/344938
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    • Journal articles

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