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  • Work in Progress: Parenting Children with Disabilities

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    Cooper_2010_02Thesis.pdf (13.94Mb)
    Author(s)
    Cooper, Jennifer Robyn Fitchett
    Primary Supervisor
    Borbasi, Sally
    St John, Winsome
    Other Supervisors
    Jessup, Melanie
    Year published
    2010
    Metadata
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    Abstract
    A grounded theory approach was used in this study to explore the individual needs of parents raising a child diagnosed with disability. The focus was on what parents regarded as their personal and support needs, how they met them and how they would have ideally liked to meet them. Of particular interest were the strategies parents developed and implemented in order to manage and meet their personal and support needs to achieve some sense of normality in their family lives. Parents not only have support needs specific to the challenges of accepting and raising a child with a disability but more wide ranging personal needs ...
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    A grounded theory approach was used in this study to explore the individual needs of parents raising a child diagnosed with disability. The focus was on what parents regarded as their personal and support needs, how they met them and how they would have ideally liked to meet them. Of particular interest were the strategies parents developed and implemented in order to manage and meet their personal and support needs to achieve some sense of normality in their family lives. Parents not only have support needs specific to the challenges of accepting and raising a child with a disability but more wide ranging personal needs that for the most part are neither understood nor recognised by health professionals and service providers. Existing research has primarily examined families of children with disabilities from the perspective of health professionals. There was almost no research to guide health professionals about the involvement of parents in decisions about interventions to secure the child’s future and family viability. Much of the established research has approached issues for parents from the perspective of the child’s health and medical or rehabilitative needs, rather than meeting parents’ needs and the processes of “normalising” family function. Research has failed to consider what parents perceive they need to enable them to cope and how to support the family unit so that a diagnosis of disability does not ultimately destroy the relationships within it.
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    Thesis Type
    Thesis (PhD Doctorate)
    Degree Program
    Doctor of Philosophy (PhD)
    School
    School of Nursing and Midwifery
    DOI
    https://doi.org/10.25904/1912/1995
    Copyright Statement
    The author owns the copyright in this thesis, unless stated otherwise.
    Item Access Status
    Public
    Note
    This thesis has been scanned.
    Subject
    Caring for children with disabilities
    Parenting children with disabilities
    Children with disabilities
    Parent and child
    Grounded theory approach
    Publication URI
    http://hdl.handle.net/10072/365705
    Collection
    • Theses - Higher Degree by Research

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