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  • Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study

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    AdamsPUB5063.pdf (329.3Kb)
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    Accepted Manuscript (AM)
    Author(s)
    Adams, Dawn
    Clarke, Samantha
    Griffith, Gemma
    Howlin, Pat
    Moss, Jo
    Petty, Jane
    Tunnicliffe, Penny
    Oliver, Chris
    Griffith University Author(s)
    Adams, Dawn M.
    Year published
    2018
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    Abstract
    It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB (n = 18) or low/no CB (n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive ...
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    It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB (n = 18) or low/no CB (n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area.
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    Journal Title
    American Journal on Intellectual and Developmental Disabilities
    Volume
    123
    Issue
    3
    DOI
    https://doi.org/10.1352/1944-7558-123.3.241
    Copyright Statement
    © 2018 AAIDD. The attached file is reproduced here in accordance with the copyright policy of the publisher. Please refer to the journal's website for access to the definitive, published version.
    Subject
    Education
    Special education and disability
    Psychology
    Publication URI
    http://hdl.handle.net/10072/376043
    Collection
    • Journal articles

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