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dc.contributor.authorOcchipinti, Stefano
dc.contributor.authorDunn, Jeff
dc.contributor.authorO'Connell, Dianne L
dc.contributor.authorGarvey, Gail
dc.contributor.authorValery, Patricia C
dc.contributor.authorBall, David
dc.contributor.authorFong, Kwun M
dc.contributor.authorVinod, Shalini
dc.contributor.authorChambers, Suzanne
dc.date.accessioned2019-07-04T12:41:52Z
dc.date.available2019-07-04T12:41:52Z
dc.date.issued2018
dc.identifier.issn1556-0864
dc.identifier.doi10.1016/j.jtho.2018.06.015
dc.identifier.urihttp://hdl.handle.net/10072/381976
dc.description.abstractObjective: To examine the personal experiences of people with lung cancer and their caregivers and how stigma is manifested throughout a patient’s social network. Methods: A qualitative thematic analysis of interviews with 28 patients with lung cancer and their caregivers was conducted. Telephone interviews were conducted and transcribed verbatim. Data analysis was guided by contemporary stigma theory. Results: Patients and caregivers reported feeling high levels of felt stigma and concomitant psychological distress in response to the diagnosis of lung cancer. Three overarching themes emerged: the nexus of lung cancer and smoking, moralization, and attacking the link between lung cancer and smoking. Stigma was inevitably linked to smoking, and this formed the hub around which the other themes were organized. Caregivers reported feeling invisible and noted a lack of support systems for families and caregivers. In addition, there was evidence that caregivers experienced stigma by association as members of the patients’ close networks. Both groups responded ambivalently to stigmatizing antismoking advertisements. Conclusions: The qualitative analysis demonstrated the complex interplay of the social and personal domains in the experience and outcomes of stigma in lung cancer. There is a significant potential for caregivers of patients with lung cancer to experience exacerbations of psychosocial distress as a consequence of widely shared negative views about lung cancer and its prognosis. It remains for researchers and practitioners to incorporate such complexity in addressing stigma and psychosocial distress in both patients and caregivers.
dc.description.peerreviewedYes
dc.languageEnglish
dc.publisherElsevier
dc.publisher.placeUnited States
dc.relation.ispartofpagefrom1443
dc.relation.ispartofpageto1453
dc.relation.ispartofissue10
dc.relation.ispartofjournalJournal of Thoracic Oncology
dc.relation.ispartofvolume13
dc.subject.fieldofresearchOncology and Carcinogenesis not elsewhere classified
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchCardiorespiratory Medicine and Haematology
dc.subject.fieldofresearchcode111299
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1102
dc.titleLung Cancer Stigma across the Social Network: Patient and Caregiver Perspectives
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
dc.description.versionPost-print
gro.facultyGriffith Health, School of Applied Psychology
gro.rights.copyright© 2018 Lippincott Williams & Wilkins. This is a non-final version of an article published in final form in Journal of Thoracic Oncology, Volume 13, Issue 10, 2018. Reproduced in accordance with the copyright policy of the publisher. Please refer to the journal link for access to the definitive, published version.
gro.hasfulltextFull Text
gro.griffith.authorOcchipinti, Stefano
gro.griffith.authorChambers, Suzanne K.
gro.griffith.authorDunn, Jeffrey


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