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  • Parental Decision-Making and Deaf Children: A Systematic Literature Review

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    Creed187503.pdf (430.0Kb)
    Author(s)
    Porter, Ann
    Creed, Peter
    Hood, Michelle
    Ching, Teresa YC
    Griffith University Author(s)
    Porter, Ann
    Hood, Michelle H.
    Creed, Peter A.
    Year published
    2018
    Metadata
    Show full item record
    Abstract
    Parents or caregivers of children who are deaf or hard of hearing are required to make complex and rational decisions soon after the confirmation of hearing loss. Ways of facilitating decision-making have been a focus within the healthcare sector for two decades and shared decision-making is now widely viewed as the standard for good clinical care. A systematic literature review was undertaken to identify the extent to which the principles of shared decision-making and informed choice have been implemented for parents when they make decisions related to their children with permanent hearing loss. Five databases were searched ...
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    Parents or caregivers of children who are deaf or hard of hearing are required to make complex and rational decisions soon after the confirmation of hearing loss. Ways of facilitating decision-making have been a focus within the healthcare sector for two decades and shared decision-making is now widely viewed as the standard for good clinical care. A systematic literature review was undertaken to identify the extent to which the principles of shared decision-making and informed choice have been implemented for parents when they make decisions related to their children with permanent hearing loss. Five databases were searched for peer-reviewed papers describing the results of original research published from 2000 to 2017, yielding 37 relevant papers. Studies were reviewed using the three phases of decision-making—information exchange, deliberation, and implementation. Two decisions dominated these studies—implantable devices and communication modality. Most papers dealt with decision-making in the context of bilateral hearing loss, with only one study focusing on unilateral hearing loss. The review identified gaps where further research is needed to ensure the lessons learnt in the broader decision-making literature are implemented when parents make decisions regarding their child who is deaf or hard of hearing.
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    Journal Title
    Journal of Deaf Studies and Deaf Education
    Volume
    23
    Issue
    4
    Publisher URI
    https://academic.oup.com/jdsde/article/23/4/295/5045651
    DOI
    https://doi.org/10.1093/deafed/eny019
    Copyright Statement
    © 2018 Oxford University Press. This is a pre-copy-editing, author-produced PDF of an article accepted for publication in Journal of Deaf Studies and Deaf Education following peer review. The definitive publisher-authenticated version Parental Decision-Making and Deaf Children: A Systematic Literature Review, Journal of Deaf Studies and Deaf Education, Vol. 23, Iss. 4, Oct 2018, Pages 295–306 is available online at: https://doi.org/10.1093/deafed/eny019
    Subject
    Education
    Language, Communication and Culture
    Publication URI
    http://hdl.handle.net/10072/383721
    Collection
    • Journal articles

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