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dc.contributor.authorKelly, Jaimon T
dc.contributor.authorCampbell, Katrina L
dc.contributor.authorHoffmann, Tammy
dc.contributor.authorReidlinger, Dianne P
dc.date.accessioned2019-06-10T01:33:02Z
dc.date.available2019-06-10T01:33:02Z
dc.date.issued2018
dc.identifier.issn1051-2276
dc.identifier.doi10.1053/j.jrn.2017.07.008
dc.identifier.urihttp://hdl.handle.net/10072/384090
dc.description.abstractObjective: People with chronic kidney disease (CKD) contend with complex dietary recommendations. The challenge in practice is for clinicians to provide individualized support with the frequency and consistency required to sustain dietary changes. This study aimed to describe the experiences of patients with managing dietary recommendations, including their perspectives on the potential to use telehealth to support dietary management in CKD. Design: Focus group study. Subjects: Twenty-one adult patients with CKD (nondialysis) and 3 caregivers (total N = 24) purposively sampled to achieve diverse demographic and clinical characteristics, from two nephrology units in Queensland, Australia. Methods: Five focus groups were conducted, audio recorded, and transcribed. Transcripts were analyzed using thematic analysis drawing on the principles of grounded theory. Main Outcome Measure: Themes aligned with the research question. Results: We identified five themes: exasperating stagnancy (patronized by redundant advice, confused and unprepared for dietary change, inevitability of failure, and barriers to accessing dietetic services); supporting and sustaining change (receiving regular feedback, incremental and comprehendible modification, practical guidance on food, flexibility in monitoring schedule, and valuing peer advice); fostering ownership (seeking kidney diet information, enacting behavior change, making reminders, and tracking progress against targets); motivators and positive learning instruction (relying on reassurance, positive reinforcement, focusing on allowable foods, and involving family); threats and ambiguities of risk (sugar as the culprit, ubiquity of salt, illegible food labeling, avoiding processed foods, and questioning credibility of sources). Conclusions: Patients with CKD desire a preventative approach to CKD progression and maintaining their health, however, are stymied by dietary restrictions and a lack of reliable dietetic advice. Easy-to-use telehealth options have the potential to overcome the shortcomings in current health service delivery which may be limiting factors to providing these approaches. They provide patients with pragmatic tools, comprehensible and consistent information which fosters ownership and self-monitoring.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.relation.ispartofpagefrom393
dc.relation.ispartofpageto402
dc.relation.ispartofissue6
dc.relation.ispartofjournalJournal of Renal Nutrition
dc.relation.ispartofvolume28
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchNutrition and Dietetics
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1111
dc.titlePatient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
gro.hasfulltextNo Full Text
gro.griffith.authorCampbell, Katrina
gro.griffith.authorKelly, Jaimon


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