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dc.contributor.authorKnight, Sarah
dc.contributor.authorElders, Shane
dc.contributor.authorRodda, Jill
dc.contributor.authorHarvey, Adrienne
dc.contributor.authorLubitz, Lionel
dc.contributor.authorRowe, Kathy
dc.contributor.authorReveley, Colette
dc.contributor.authorHennel, Sabine
dc.contributor.authorTowns, Susan
dc.contributor.authorKozlowska, Kasia
dc.contributor.authorPayne, Donald N
dc.contributor.authorMarshall-Gradisnik, Sonya
dc.contributor.authorScheinberg, Adam
dc.date.accessioned2019-07-11T03:01:44Z
dc.date.available2019-07-11T03:01:44Z
dc.date.issued2019
dc.identifier.issn0003-9888
dc.identifier.doi10.1136/archdischild-2018-316450
dc.identifier.urihttp://hdl.handle.net/10072/386014
dc.description.abstractObjective: To estimate the paediatrician-diagnosed incidence of chronic fatigue syndrome (CFS) in Australia, and describe demographic and clinical features, as well as approaches to diagnosis and management. Methods: The Australian Paediatric Surveillance Unit facilitates monthly national surveillance of uncommon conditions seen by paediatricians. Data from young people aged <18 years diagnosed with CFS were collected. Incidence was estimated based on new cases reported from April 2015 to April 2016. Results: A total of 164 cases of newly diagnosed CFS in young people aged 4-17 years were identified for inclusion. The estimated national incidence for children aged 4-9 years was 0.25 per 100 000 per annum. In children aged 10-17 years, the estimated incidence of paediatrician-diagnosed cases for Victoria (17.48 per 100 000) was substantially greater than other Australian states (range 1.31-5.51 per 100 000). Most cases were female and Caucasian, most commonly presenting after an infectious illness with symptoms gradual in onset. The majority were diagnosed at least 13 months after symptom onset. Symptoms, associations, investigations and management strategies were highly variable. Conclusions: Current findings suggest that, consistent with other countries, the Australian incidence of CFS in children aged <10 years is very low. In contrast, the national incidence of CFS in older children and adolescents (aged 10-17 years) is more unclear, with marked variability between geographical regions apparent. This may be due to variation in service accessibility and clinician understanding of CFS. Accordingly, national initiatives to improve equity of care for children with CFS may be required.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherBMJ
dc.relation.ispartofjournalArchives of Disease in Childhood
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchPaediatrics and Reproductive Medicine
dc.subject.fieldofresearchPublic Health and Health Services
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1114
dc.subject.fieldofresearchcode1117
dc.titleEpidemiology of paediatric chronic fatigue syndrome in Australia
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
dc.description.versionVersion of Record (VoR)
gro.description.notepublicThis publication has been entered into Griffith Research Online as an Advanced Online Version.
gro.rights.copyright© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.
gro.hasfulltextFull Text
gro.griffith.authorMarshall-Gradisnik, Sonya M.


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