dc.contributor.author | Shanley, Dianne C | |
dc.contributor.author | Hawkins, Erinn | |
dc.contributor.author | Page, Marjad | |
dc.contributor.author | Shelton, Doug | |
dc.contributor.author | Liu, Wei | |
dc.contributor.author | Webster, Heidi | |
dc.contributor.author | Moritz, Karen M | |
dc.contributor.author | Barry, Linda | |
dc.contributor.author | Ziviani, Jenny | |
dc.contributor.author | Morrissey, Shirley | |
dc.contributor.author | O'Callaghan, Frances | |
dc.contributor.author | Wood, Andrew | |
dc.contributor.author | Katsikitis, Mary | |
dc.contributor.author | Reid, Natasha | |
dc.date.accessioned | 2019-09-20T06:05:00Z | |
dc.date.available | 2019-09-20T06:05:00Z | |
dc.date.issued | 2019 | |
dc.identifier.issn | 1472-6963 | |
dc.identifier.doi | 10.1186/s12913-019-4378-5 | |
dc.identifier.uri | http://hdl.handle.net/10072/387589 | |
dc.description.abstract | BACKGROUND: Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disorder associated with prenatal alcohol exposure. Early identification can improve functioning for individuals and reduce costs to society. Gold standard methods of diagnosing FASD rely on specialists to deliver intensive, multidisciplinary assessments. While comprehensive, prevalence rates highlight that this assessment model cannot meet demand, nor is it feasible in remote areas where specialist services are lacking. This project aims to expand the capabilities of remote practitioners in north Queensland, Australia, where 23-94% of the community identify as First Nations people. Integrating cultural protocols with the implementation science theories of Knowledge-To-Action, Experience-Based Co-Design, and RE-AIM, remote practitioners with varying levels of experience will be trained in a co-designed, culturally appropriate, tiered neurodevelopmental assessment process that considers FASD as a potential outcome. This innovative assessment process can be shared between primary and tertiary health care settings, improving access to services for children and families. This project aims to demonstrate that neurodevelopmental assessments can be integrated seamlessly with established community practices and sustained through evidence-based workforce development strategies. METHODS: The Yapatjarrathati project (named by the local First Nations community and meaning 'to get well') is a mixed-method implementation trial of a tiered assessment process for identifying FASD within a remote Australian community. In collaboration with the community, we co-designed: (a) a culturally sensitive, tiered, neurodevelopmental assessment process for identifying FASD, and (b) training materials that up-skill remote practitioners with varying levels of expertise. Qualitative interviews for primary, secondary and end users will be undertaken to evaluate the implementation strategies. RE-AIM will be used to evaluate the reach, effectiveness, adoption, implementation and maintenance of the assessment and training process. DISCUSSION: Co-designed with the local community, integrated with cultural protocols, and based on implementation science theories, the assessment and training process from this project will have the potential to be scaled-up across other remote locations and trialed in urban settings. The Yapatjarrathati project is an important step towards increasing the availability of neurodevelopmental services across Australia and empowering remote practitioners to contribute to the FASD assessment process. | |
dc.description.peerreviewed | Yes | |
dc.language | English | |
dc.language.iso | eng | |
dc.publisher | BioMed Central | |
dc.publisher.place | United Kingdom | |
dc.relation.ispartofpagefrom | 649: 1 | |
dc.relation.ispartofpageto | 649: 11 | |
dc.relation.ispartofissue | 1 | |
dc.relation.ispartofjournal | BMC Health Serv Res | |
dc.relation.ispartofvolume | 19 | |
dc.subject.fieldofresearch | Health services and systems | |
dc.subject.fieldofresearch | Testing, assessment and psychometrics | |
dc.subject.fieldofresearch | Rural and remote health services | |
dc.subject.fieldofresearch | Aboriginal and Torres Strait Islander health services | |
dc.subject.fieldofresearch | Paediatrics | |
dc.subject.fieldofresearch | Nursing | |
dc.subject.fieldofresearch | Public health | |
dc.subject.fieldofresearchcode | 4203 | |
dc.subject.fieldofresearchcode | 520108 | |
dc.subject.fieldofresearchcode | 420321 | |
dc.subject.fieldofresearchcode | 450409 | |
dc.subject.fieldofresearchcode | 3213 | |
dc.subject.fieldofresearchcode | 4205 | |
dc.subject.fieldofresearchcode | 4206 | |
dc.subject.keywords | Aboriginal and/or Torres Strait Islander peoples | |
dc.subject.keywords | Developmental assessment | |
dc.subject.keywords | Fetal alcohol spectrum disorder | |
dc.subject.keywords | First nations | |
dc.subject.keywords | Implementation strategy | |
dc.title | Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community. | |
dc.type | Journal article | |
dc.type.description | C1 - Articles | |
dcterms.bibliographicCitation | Shanley, DC; Hawkins, E; Page, M; Shelton, D; Liu, W; Webster, H; Moritz, KM; Barry, L; Ziviani, J; Morrissey, S; O'Callaghan, F; Wood, A; Katsikitis, M; Reid, N, Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community., BMC Health Serv Res, 2019, 19 (1), pp. 649: 1-649: 11 | |
dcterms.dateAccepted | 2019-07-29 | |
dcterms.license | http://creativecommons.org/licenses/by/4.0/ | |
dc.date.updated | 2019-09-20T03:20:03Z | |
dc.description.version | Version of Record (VoR) | |
gro.rights.copyright | © The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0
International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and
reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to
the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver
(http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. | |
gro.hasfulltext | Full Text | |
gro.griffith.author | Shanley, Dianne | |
gro.griffith.author | Hawkins, Erinn | |
gro.griffith.author | Wood, Andrew P. | |