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dc.contributor.authorShanley, Dianne C
dc.contributor.authorHawkins, Erinn
dc.contributor.authorPage, Marjad
dc.contributor.authorShelton, Doug
dc.contributor.authorLiu, Wei
dc.contributor.authorWebster, Heidi
dc.contributor.authorMoritz, Karen M
dc.contributor.authorBarry, Linda
dc.contributor.authorZiviani, Jenny
dc.contributor.authorMorrissey, Shirley
dc.contributor.authorO'Callaghan, Frances
dc.contributor.authorWood, Andrew
dc.contributor.authorKatsikitis, Mary
dc.contributor.authorReid, Natasha
dc.date.accessioned2019-09-20T06:05:00Z
dc.date.available2019-09-20T06:05:00Z
dc.date.issued2019
dc.identifier.issn1472-6963
dc.identifier.doi10.1186/s12913-019-4378-5
dc.identifier.urihttp://hdl.handle.net/10072/387589
dc.description.abstractBACKGROUND: Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disorder associated with prenatal alcohol exposure. Early identification can improve functioning for individuals and reduce costs to society. Gold standard methods of diagnosing FASD rely on specialists to deliver intensive, multidisciplinary assessments. While comprehensive, prevalence rates highlight that this assessment model cannot meet demand, nor is it feasible in remote areas where specialist services are lacking. This project aims to expand the capabilities of remote practitioners in north Queensland, Australia, where 23-94% of the community identify as First Nations people. Integrating cultural protocols with the implementation science theories of Knowledge-To-Action, Experience-Based Co-Design, and RE-AIM, remote practitioners with varying levels of experience will be trained in a co-designed, culturally appropriate, tiered neurodevelopmental assessment process that considers FASD as a potential outcome. This innovative assessment process can be shared between primary and tertiary health care settings, improving access to services for children and families. This project aims to demonstrate that neurodevelopmental assessments can be integrated seamlessly with established community practices and sustained through evidence-based workforce development strategies. METHODS: The Yapatjarrathati project (named by the local First Nations community and meaning 'to get well') is a mixed-method implementation trial of a tiered assessment process for identifying FASD within a remote Australian community. In collaboration with the community, we co-designed: (a) a culturally sensitive, tiered, neurodevelopmental assessment process for identifying FASD, and (b) training materials that up-skill remote practitioners with varying levels of expertise. Qualitative interviews for primary, secondary and end users will be undertaken to evaluate the implementation strategies. RE-AIM will be used to evaluate the reach, effectiveness, adoption, implementation and maintenance of the assessment and training process. DISCUSSION: Co-designed with the local community, integrated with cultural protocols, and based on implementation science theories, the assessment and training process from this project will have the potential to be scaled-up across other remote locations and trialed in urban settings. The Yapatjarrathati project is an important step towards increasing the availability of neurodevelopmental services across Australia and empowering remote practitioners to contribute to the FASD assessment process.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherBioMed Central
dc.publisher.placeUnited Kingdom
dc.relation.ispartofpagefrom649: 1
dc.relation.ispartofpageto649: 11
dc.relation.ispartofissue1
dc.relation.ispartofjournalBMC Health Serv Res
dc.relation.ispartofvolume19
dc.subject.fieldofresearchHealth services and systems
dc.subject.fieldofresearchTesting, assessment and psychometrics
dc.subject.fieldofresearchRural and remote health services
dc.subject.fieldofresearchAboriginal and Torres Strait Islander health services
dc.subject.fieldofresearchPaediatrics
dc.subject.fieldofresearchNursing
dc.subject.fieldofresearchPublic health
dc.subject.fieldofresearchcode4203
dc.subject.fieldofresearchcode520108
dc.subject.fieldofresearchcode420321
dc.subject.fieldofresearchcode450409
dc.subject.fieldofresearchcode3213
dc.subject.fieldofresearchcode4205
dc.subject.fieldofresearchcode4206
dc.subject.keywordsAboriginal and/or Torres Strait Islander peoples
dc.subject.keywordsDevelopmental assessment
dc.subject.keywordsFetal alcohol spectrum disorder
dc.subject.keywordsFirst nations
dc.subject.keywordsImplementation strategy
dc.titleProtocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community.
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationShanley, DC; Hawkins, E; Page, M; Shelton, D; Liu, W; Webster, H; Moritz, KM; Barry, L; Ziviani, J; Morrissey, S; O'Callaghan, F; Wood, A; Katsikitis, M; Reid, N, Protocol for the Yapatjarrathati project: a mixed-method implementation trial of a tiered assessment process for identifying fetal alcohol spectrum disorders in a remote Australian community., BMC Health Serv Res, 2019, 19 (1), pp. 649: 1-649: 11
dcterms.dateAccepted2019-07-29
dcterms.licensehttp://creativecommons.org/licenses/by/4.0/
dc.date.updated2019-09-20T03:20:03Z
dc.description.versionVersion of Record (VoR)
gro.rights.copyright© The Author(s). 2019 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
gro.hasfulltextFull Text
gro.griffith.authorShanley, Dianne
gro.griffith.authorHawkins, Erinn
gro.griffith.authorWood, Andrew P.


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