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dc.contributor.authorBahrampour, M
dc.contributor.authorNorman, R
dc.contributor.authorByrnes, J
dc.contributor.authorDownes, M
dc.contributor.authorScuffham, PA
dc.date.accessioned2019-09-26T03:38:43Z
dc.date.available2019-09-26T03:38:43Z
dc.date.issued2019
dc.identifier.issn2044-6055
dc.identifier.doi10.1136/bmjopen-2019-029325
dc.identifier.urihttp://hdl.handle.net/10072/387774
dc.description.abstractIntroduction: Cerebral palsy (CP) is a lifelong condition. The CP quality of life (CPQOL) instrument is a frequently used disease-specific instrument to assess health-related quality of life (HRQoL) in people with CP, but it cannot be used to generate quality-adjusted life years (QALY) which are the basis of cost utility analysis (CUA). Generic utility instruments (such as the EQ-5D or SF-6D) that are used to value HRQOL may be insensitive to small but important health changes in children with CP. This study aims to generate a preference-based scoring algorithm for the CP six dimensions (CP-6D), a classification system developed from the CPQOL. Methods and analysis: A discrete choice experiment with duration (DCEtto) will be administrated to value health states described by the CP-6D classification system. These health states will be presented to members of Australian general population and parents of children with CP via an online survey. Conditional logit regression will be used to produce the utility algorithm for CP-6D. Ethics and dissemination: The Griffith University Human Research Ethics Committee approved for the study (reference HREC/number 2018/913). The developed algorithm can be applied to previous and future economic evaluation of interventions and treatments targeting people with CP which have used either the CPQOL or CP-6D.
dc.description.peerreviewedYes
dc.languageEnglish
dc.publisherBMJ Group
dc.publisher.placeUnited Kingdom
dc.relation.ispartofpagefrome029325: 1
dc.relation.ispartofpagetoe029325: 6
dc.relation.ispartofissue9
dc.relation.ispartofjournalBMJ open
dc.relation.ispartofvolume9
dc.subject.fieldofresearchNeurosciences
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchPublic Health and Health Services
dc.subject.fieldofresearchOther Medical and Health Sciences
dc.subject.fieldofresearchcode1109
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1117
dc.subject.fieldofresearchcode1199
dc.subject.keywordsCerebral palsy
dc.subject.keywordsChoice experiment
dc.subject.keywordsPreference
dc.subject.keywordshealth related utility values
dc.titleDeveloping a cerebral palsy-specific preference-based measure for a six-dimensional classification system (CP-6D): protocol for a valuation study
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationBahrampour, M; Norman, R; Byrnes, J; Downes, M; Scuffham, PA, Developing a cerebral palsy-specific preference-based measure for a six-dimensional classification system (CP-6D): protocol for a valuation study, BMJ open, 2019, 9 (9), pp. e029325: 1-e029325: 6
dcterms.licensehttp://creativecommons.org/licenses/by-nc/4.0/
dc.date.updated2019-09-26T03:27:20Z
dc.description.versionPublished
gro.rights.copyright© Author(s) 2019. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial.
gro.hasfulltextFull Text
gro.griffith.authorScuffham, Paul A.
gro.griffith.authorByrnes, Joshua M.
gro.griffith.authorDownes, Martin J.
gro.griffith.authorBahrampour, Mina


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