The experience and challenges of rural persons with cancer and their families

Abstract

Objective: Approximately 30% of the population of Australia live over 180 km from tertiary healthcare facilities. In rural areas there are fewer health resources and greater travelling distances for treatment. Family support for health care or illness prevention can either be strengthened or disrupted in times of need, yet family is a key aspect of the person's supportive network. This research sought to understand the experiences and challenges for persons with cancer and their families from rural Queensland. Design: A qualitative study used 14 telephone interviews involving eight persons with cancer and six family members to understand their experience when travel for treatment was required. Setting: Rural Queensland, Australia. Participants: Persons with cancer and family who stayed in Cancer Council Queensland Accommodation. Results: Three themes developed; confronting diagnosis, challenges, and negotiating support. Conclusions: Challenges included travel concerns and lack of services at home; however, family support and appreciating positive aspects were highlighted as part of the experience. This research identified a need for tailored support, which recognises their rurality. Open communication with health professionals helps identify specific needs and service barriers.