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dc.contributor.authorUgalde, A
dc.contributor.authorBlaschke, S
dc.contributor.authorBoltong, A
dc.contributor.authorSchofield, P
dc.contributor.authorAranda, S
dc.contributor.authorPhipps-Nelson, J
dc.contributor.authorChambers, SK
dc.contributor.authorKrishnasamy, M
dc.contributor.authorLivingston, PM
dc.date.accessioned2020-01-30T22:16:30Z
dc.date.available2020-01-30T22:16:30Z
dc.date.issued2019
dc.identifier.issn2044-6055
dc.identifier.doi10.1136/bmjopen-2018-028315
dc.identifier.urihttp://hdl.handle.net/10072/390996
dc.description.abstractObjective To explore the experiences of cancer caregivers who live in rural Australia and travel to a metropolitan cancer health service to access cancer treatment. Design A qualitative study using semistructured, audio-recorded interviews conducted between December 2017 and July 2018 with caregivers and social workers. Thematic analysis using interpretative descriptive techniques performed on textual interview data within a critical realist paradigm to develop understanding of rural caregivers’ lived experiences. Setting Participants were from rural areas attending a metropolitan cancer centre in Australia and social workers. Participants 21 caregivers (16 female) of people with cancer living in rural Australia within a minimum distance of 100 km from the metropolitan cancer centre where they access treatment, and five social workers employed at a metropolitan cancer service with experience of working with rural patients and caregivers. Results Thematic analysis developed two overarching themes: theme 1: caregiving in the rural setting describes the unique circumstance in which caregiving for a person with cancer takes place in the rural setting at considerable distance from the cancer service where the person receives treatment. This is explored in three categories: ‘Rural community and culture’, ‘Life adjustments’ and ‘Available supports’. Theme 2: accessing metropolitan cancer services captures the multiplicity of tasks and challenges involved in organising and coordinating the journey to access cancer treatment in a metropolitan hospital, which is presented in the following categories: ‘Travel’, ‘Accommodation’ and ‘Health system navigation’. Conclusions Caregivers who live in rural areas face significant challenges when confronting geographic isolation between their rural home environment and the metropolitan setting, where the patient accessed cancer treatment. There is a need for healthcare services to identify this group to develop feasible and sustainable ways to provide interventions that have the best chance of assisting rural caregivers in supporting the patient while maintaining their own health and well-being.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherBMJ
dc.relation.ispartofissue7
dc.relation.ispartofjournalBMJ Open
dc.relation.ispartofvolume9
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchPublic Health and Health Services
dc.subject.fieldofresearchOther Medical and Health Sciences
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1117
dc.subject.fieldofresearchcode1199
dc.subject.keywordscancer
dc.subject.keywordscaregivers
dc.subject.keywordsinterviews
dc.subject.keywordsqualitative
dc.subject.keywordsrural
dc.titleUnderstanding rural caregivers' experiences of cancer care when accessing metropolitan cancer services: A qualitative study
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationUgalde, A; Blaschke, S; Boltong, A; Schofield, P; Aranda, S; Phipps-Nelson, J; Chambers, SK; Krishnasamy, M; Livingston, PM, Understanding rural caregivers' experiences of cancer care when accessing metropolitan cancer services: A qualitative study, BMJ Open, 2019, 9 (7)
dcterms.licensehttp://creativecommons.org/licenses/by-nc/4.0/
dc.date.updated2020-01-30T22:11:58Z
dc.description.versionPublished
gro.rights.copyright© Author(s) 2019. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial.
gro.hasfulltextFull Text
gro.griffith.authorChambers, Suzanne K.


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