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dc.contributor.authorUgalde, A
dc.contributor.authorBlaschke, S
dc.contributor.authorBoltong, A
dc.contributor.authorSchofield, P
dc.contributor.authorAranda, S
dc.contributor.authorPhipps-Nelson, J
dc.contributor.authorChambers, SK
dc.contributor.authorKrishnasamy, M
dc.contributor.authorLivingston, PM
dc.date.accessioned2020-01-30T22:16:30Z
dc.date.available2020-01-30T22:16:30Z
dc.date.issued2019
dc.identifier.issn2044-6055en_US
dc.identifier.doi10.1136/bmjopen-2018-028315en_US
dc.identifier.urihttp://hdl.handle.net/10072/390996
dc.description.abstractObjective To explore the experiences of cancer caregivers who live in rural Australia and travel to a metropolitan cancer health service to access cancer treatment. Design A qualitative study using semistructured, audio-recorded interviews conducted between December 2017 and July 2018 with caregivers and social workers. Thematic analysis using interpretative descriptive techniques performed on textual interview data within a critical realist paradigm to develop understanding of rural caregivers’ lived experiences. Setting Participants were from rural areas attending a metropolitan cancer centre in Australia and social workers. Participants 21 caregivers (16 female) of people with cancer living in rural Australia within a minimum distance of 100 km from the metropolitan cancer centre where they access treatment, and five social workers employed at a metropolitan cancer service with experience of working with rural patients and caregivers. Results Thematic analysis developed two overarching themes: theme 1: caregiving in the rural setting describes the unique circumstance in which caregiving for a person with cancer takes place in the rural setting at considerable distance from the cancer service where the person receives treatment. This is explored in three categories: ‘Rural community and culture’, ‘Life adjustments’ and ‘Available supports’. Theme 2: accessing metropolitan cancer services captures the multiplicity of tasks and challenges involved in organising and coordinating the journey to access cancer treatment in a metropolitan hospital, which is presented in the following categories: ‘Travel’, ‘Accommodation’ and ‘Health system navigation’. Conclusions Caregivers who live in rural areas face significant challenges when confronting geographic isolation between their rural home environment and the metropolitan setting, where the patient accessed cancer treatment. There is a need for healthcare services to identify this group to develop feasible and sustainable ways to provide interventions that have the best chance of assisting rural caregivers in supporting the patient while maintaining their own health and well-being.en_US
dc.description.peerreviewedYesen_US
dc.languageengen_US
dc.publisherBMJen_US
dc.relation.ispartofissue7en_US
dc.relation.ispartofjournalBMJ Openen_US
dc.relation.ispartofvolume9en_US
dc.subject.fieldofresearchClinical Sciencesen_US
dc.subject.fieldofresearchPublic Health and Health Servicesen_US
dc.subject.fieldofresearchOther Medical and Health Sciencesen_US
dc.subject.fieldofresearchcode1103en_US
dc.subject.fieldofresearchcode1117en_US
dc.subject.fieldofresearchcode1199en_US
dc.subject.keywordscanceren_US
dc.subject.keywordscaregiversen_US
dc.subject.keywordsinterviewsen_US
dc.subject.keywordsqualitativeen_US
dc.subject.keywordsruralen_US
dc.titleUnderstanding rural caregivers' experiences of cancer care when accessing metropolitan cancer services: A qualitative studyen_US
dc.typeJournal articleen_US
dc.type.descriptionC1 - Articlesen_US
dcterms.bibliographicCitationUgalde, A; Blaschke, S; Boltong, A; Schofield, P; Aranda, S; Phipps-Nelson, J; Chambers, SK; Krishnasamy, M; Livingston, PM, Understanding rural caregivers' experiences of cancer care when accessing metropolitan cancer services: A qualitative study, BMJ Open, 2019, 9 (7)en_US
dcterms.licensehttp://creativecommons.org/licenses/by-nc/4.0/en_US
dc.date.updated2020-01-30T22:11:58Z
dc.description.versionPublisheden_US
gro.rights.copyright© Author(s) 2019. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial.en_US
gro.hasfulltextFull Text
gro.griffith.authorChambers, Suzanne K.


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