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dc.contributor.authorHills, Karenne
dc.contributor.authorClapton, Jayne
dc.contributor.authorDorsett, Pat
dc.date.accessioned2020-04-01T22:43:44Z
dc.date.available2020-04-01T22:43:44Z
dc.date.issued2019
dc.identifier.issn1836-8808
dc.identifier.urihttp://hdl.handle.net/10072/392889
dc.description.abstractPeople with severe (nonverbal) autism are significantly under researched. Physical, communication and social limitations have created misconceptions concerning their ability to engage in meaningful communication and to participate in collaborative research. Those who are nonverbal often communicate by use of a specialised device that requires the assistance of a personal facilitator. This process, while representing the preferred and frequently only method of communication for people with nonverbal autism, is subject to significant criticism by some scholars. Therefore, ethical and practical considerations concerning authenticity, capacity and consent require careful attention when conducting research with this population. These factors however, must be held within a methodological design that provides space for the inclusion, respect and empowerment of research participants to ensure their voices are authentically represented. This commentary provides a response to these considerations as they were addressed within a research study that used interview as a method of data collection for people with nonverbal autism.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherGriffith University, School of Human Services and Social Work
dc.publisher.urihttps://josi.org.au/articles/abstract/152/
dc.relation.ispartofpagefrom56
dc.relation.ispartofpageto62
dc.relation.ispartofissue2
dc.relation.ispartofjournalJournal of Social Inclusion
dc.relation.ispartofvolume10
dc.subject.fieldofresearchSocial Work
dc.subject.fieldofresearchSociology
dc.subject.fieldofresearchcode1607
dc.subject.fieldofresearchcode1608
dc.subject.keywordsSocial Sciences
dc.subject.keywordsSocial Issues
dc.subject.keywordsEthical Considerations
dc.subject.keywordsNonverbal Autism
dc.subject.keywordsFacilitated Communication
dc.titleEthical considerations when conducting research with people with nonverbal autism: A reflective commentary
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationHills, K; Clapton, J; Dorsett, P, Ethical considerations when conducting research with people with nonverbal autism: A reflective commentary, Journal of Social Inclusion, 2019, 10 (2), pp. 56-62
dcterms.licensehttp://creativecommons.org/licenses/by/3.0/
dc.date.updated2020-04-01T22:38:00Z
dc.description.versionVersion of Record (VoR)
gro.rights.copyright© The Author(s) 2019. This is an Open Access article distributed under the terms of the Creative Commons Attribution 3.0 Unported (CC BY 3.0) License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
gro.hasfulltextFull Text
gro.griffith.authorDorsett, Pat


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