dc.contributor.author | Havas, K | |
dc.contributor.author | Douglas, C | |
dc.contributor.author | Bonner, A | |
dc.date.accessioned | 2020-05-05T22:09:04Z | |
dc.date.available | 2020-05-05T22:09:04Z | |
dc.date.issued | 2017 | |
dc.identifier.issn | 1471-2369 | |
dc.identifier.doi | 10.1186/s12882-016-0416-2 | |
dc.identifier.uri | http://hdl.handle.net/10072/393602 | |
dc.description.abstract | Background: People with chronic kidney disease (CKD) must self-manage their illness to assist with slowing disease-progression, but this is a complex task requiring support from healthcare professionals. Despite the established importance of person-centred care, people with CKD are rarely consulted regarding their desires for self-management support (SMS). Methods: A cross-sectional survey was conducted face-to-face in a Queensland primary care clinic and distributed Australia-wide via an online interface promoted by Kidney Health Australia during 2015. Participants were ≥18 years old and had a self-reported doctor’s diagnosis of CKD (any stage; N = 97). The survey was based upon existent literature which identified 10 areas that those with CKD believe require additional support. Descriptive data were generated and Mann-Whitney U tests were performed to compare the desires of different groups of participants. Results: Of the 97 participants, 36 completed a hardcopy survey in clinic, and 61 completed the online version. Just over half (60.8%) were female, age ranged from 16-89 (M = 56.44), and time since diagnosis ranged from just diagnosed to 60 years (Mdn = 8.08 years). Strong interest in receiving additional support across all 10 areas was reported (Mdns = 8.00-10.00), with “keeping a positive attitude and taking care of mental and physical health” receiving the highest rating. Those who were: younger (p < .001); more highly educated (p < .001); working (p < .001); diagnosed longer ago (p = .015); and women (p = .050) expressed stronger overall desire for additional support. Conclusions: In addition to information about CKD and medications, everyday strategies ought to be prioritised in patient education. Varying levels of engagement and eagerness to learn more about self-management highlight the need for a person-centred approach to SMS. | |
dc.description.peerreviewed | Yes | |
dc.language | English | |
dc.language.iso | eng | |
dc.publisher | Springer Science and Business Media LLC | |
dc.relation.ispartofpagefrom | 1 | |
dc.relation.ispartofpageto | 9 | |
dc.relation.ispartofissue | 1 | |
dc.relation.ispartofjournal | BMC Nephrology | |
dc.relation.ispartofvolume | 18 | |
dc.subject.fieldofresearch | Clinical sciences | |
dc.subject.fieldofresearchcode | 3202 | |
dc.subject.keywords | Chronic kidney disease | |
dc.subject.keywords | Patient education | |
dc.subject.keywords | Patient preferences | |
dc.subject.keywords | Patient-centred care | |
dc.subject.keywords | Self-management | |
dc.title | Person-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support | |
dc.type | Journal article | |
dc.type.description | C1 - Articles | |
dcterms.bibliographicCitation | Havas, K; Douglas, C; Bonner, A, Person-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support, BMC Nephrology, 2017, 18 (1), pp. 1-9 | |
dcterms.dateAccepted | 2016-12-09 | |
dcterms.license | https://creativecommons.org/licenses/by/4.0/ | |
dc.date.updated | 2020-05-05T22:04:18Z | |
dc.description.version | Version of Record (VoR) | |
gro.rights.copyright | © The Author(s). 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated. | |
gro.hasfulltext | Full Text | |
gro.griffith.author | Bonner, Ann J. | |