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dc.contributor.authorHavas, K
dc.contributor.authorDouglas, C
dc.contributor.authorBonner, A
dc.date.accessioned2020-05-05T22:09:04Z
dc.date.available2020-05-05T22:09:04Z
dc.date.issued2017
dc.identifier.issn1471-2369
dc.identifier.doi10.1186/s12882-016-0416-2
dc.identifier.urihttp://hdl.handle.net/10072/393602
dc.description.abstractBackground: People with chronic kidney disease (CKD) must self-manage their illness to assist with slowing disease-progression, but this is a complex task requiring support from healthcare professionals. Despite the established importance of person-centred care, people with CKD are rarely consulted regarding their desires for self-management support (SMS). Methods: A cross-sectional survey was conducted face-to-face in a Queensland primary care clinic and distributed Australia-wide via an online interface promoted by Kidney Health Australia during 2015. Participants were ≥18 years old and had a self-reported doctor’s diagnosis of CKD (any stage; N = 97). The survey was based upon existent literature which identified 10 areas that those with CKD believe require additional support. Descriptive data were generated and Mann-Whitney U tests were performed to compare the desires of different groups of participants. Results: Of the 97 participants, 36 completed a hardcopy survey in clinic, and 61 completed the online version. Just over half (60.8%) were female, age ranged from 16-89 (M = 56.44), and time since diagnosis ranged from just diagnosed to 60 years (Mdn = 8.08 years). Strong interest in receiving additional support across all 10 areas was reported (Mdns = 8.00-10.00), with “keeping a positive attitude and taking care of mental and physical health” receiving the highest rating. Those who were: younger (p < .001); more highly educated (p < .001); working (p < .001); diagnosed longer ago (p = .015); and women (p = .050) expressed stronger overall desire for additional support. Conclusions: In addition to information about CKD and medications, everyday strategies ought to be prioritised in patient education. Varying levels of engagement and eagerness to learn more about self-management highlight the need for a person-centred approach to SMS.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherSpringer Science and Business Media LLC
dc.relation.ispartofpagefrom1
dc.relation.ispartofpageto9
dc.relation.ispartofissue1
dc.relation.ispartofjournalBMC Nephrology
dc.relation.ispartofvolume18
dc.subject.fieldofresearchClinical sciences
dc.subject.fieldofresearchcode3202
dc.subject.keywordsChronic kidney disease
dc.subject.keywordsPatient education
dc.subject.keywordsPatient preferences
dc.subject.keywordsPatient-centred care
dc.subject.keywordsSelf-management
dc.titlePerson-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationHavas, K; Douglas, C; Bonner, A, Person-centred care in chronic kidney disease: a cross-sectional study of patients’ desires for self-management support, BMC Nephrology, 2017, 18 (1), pp. 1-9
dcterms.dateAccepted2016-12-09
dcterms.licensehttps://creativecommons.org/licenses/by/4.0/
dc.date.updated2020-05-05T22:04:18Z
dc.description.versionVersion of Record (VoR)
gro.rights.copyright© The Author(s). 2017 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
gro.hasfulltextFull Text
gro.griffith.authorBonner, Ann J.


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