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  • Putting the consumer in the driver's seat: A visual journey through the Australian health-care system as experienced by people living with dementia and their carers

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    Author(s)
    Fitzgerald, Janna Anneke
    Curry, Joanne
    Meierink, Angelique Olde
    Cully, Ashley
    Griffith University Author(s)
    Fitzgerald, Anneke A.
    Year published
    2019
    Metadata
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    Abstract
    Objective: To better understand the individual journeys of people living with dementia and their carers through the Australian health-care system. Methods: Stories were collected from 25 participants, through five face-to-face workshops, across Australia. This produced 18 visual storyboards and a range of opportunities for improvement, which were then synthesised into an aggregated “ideal-journey” model. Results: Several issues were identified: long lead times to diagnosis; diverse experiences of treatment and support; and little coordination of care or thought for its impact on the consumer. Information about services, ...
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    Objective: To better understand the individual journeys of people living with dementia and their carers through the Australian health-care system. Methods: Stories were collected from 25 participants, through five face-to-face workshops, across Australia. This produced 18 visual storyboards and a range of opportunities for improvement, which were then synthesised into an aggregated “ideal-journey” model. Results: Several issues were identified: long lead times to diagnosis; diverse experiences of treatment and support; and little coordination of care or thought for its impact on the consumer. Information about services, their purpose and eligibility criteria was difficult to obtain, and potential care pathways were largely unexplained. Much of the carer support received was reactive rather than proactive. Conclusions: A better understanding of the current health-care pathway of dementia is essential for the design and delivery of future health-care services. It is vital to include the consumer voice in future research and allocation of health-care resources.
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    Journal Title
    Australasian Journal on Ageing
    Volume
    38
    Issue
    S2
    DOI
    https://doi.org/10.1111/ajag.12691
    Copyright Statement
    © 2019 The Authors. Australasian Journal on Ageing published by John Wiley & Sons Australia, Ltd on behalf of AJA Inc. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
    Subject
    Biomedical and clinical sciences
    Human society
    Psychology
    Science & Technology
    Life Sciences & Biomedicine
    Geriatrics & Gerontology
    Gerontology
    caregivers
    Publication URI
    http://hdl.handle.net/10072/394461
    Collection
    • Journal articles

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