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dc.contributor.authorFitzgerald, Janna Anneke
dc.contributor.authorCurry, Joanne
dc.contributor.authorMeierink, Angelique Olde
dc.contributor.authorCully, Ashley
dc.date.accessioned2020-06-07T23:51:48Z
dc.date.available2020-06-07T23:51:48Z
dc.date.issued2019
dc.identifier.issn1440-6381
dc.identifier.doi10.1111/ajag.12691
dc.identifier.urihttp://hdl.handle.net/10072/394461
dc.description.abstractObjective: To better understand the individual journeys of people living with dementia and their carers through the Australian health-care system. Methods: Stories were collected from 25 participants, through five face-to-face workshops, across Australia. This produced 18 visual storyboards and a range of opportunities for improvement, which were then synthesised into an aggregated “ideal-journey” model. Results: Several issues were identified: long lead times to diagnosis; diverse experiences of treatment and support; and little coordination of care or thought for its impact on the consumer. Information about services, their purpose and eligibility criteria was difficult to obtain, and potential care pathways were largely unexplained. Much of the carer support received was reactive rather than proactive. Conclusions: A better understanding of the current health-care pathway of dementia is essential for the design and delivery of future health-care services. It is vital to include the consumer voice in future research and allocation of health-care resources.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherWiley
dc.relation.ispartofpagefrom46
dc.relation.ispartofpageto52
dc.relation.ispartofissueS2
dc.relation.ispartofjournalAustralasian Journal on Ageing
dc.relation.ispartofvolume38
dc.subject.fieldofresearchMedical and Health Sciences
dc.subject.fieldofresearchStudies in Human Society
dc.subject.fieldofresearchPsychology and Cognitive Sciences
dc.subject.fieldofresearchcode11
dc.subject.fieldofresearchcode16
dc.subject.fieldofresearchcode17
dc.subject.keywordsScience & Technology
dc.subject.keywordsLife Sciences & Biomedicine
dc.subject.keywordsGeriatrics & Gerontology
dc.subject.keywordsGerontology
dc.subject.keywordscaregivers
dc.titlePutting the consumer in the driver's seat: A visual journey through the Australian health-care system as experienced by people living with dementia and their carers
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationFitzgerald, JA; Curry, J; Meierink, AO; Cully, A, Putting the consumer in the driver's seat: A visual journey through the Australian health-care system as experienced by people living with dementia and their carers, Australasian Journal on Ageing, 2019, 38 (S2), pp. 46-52
dcterms.dateAccepted2019-05-23
dcterms.licensehttp://creativecommons.org/licenses/by/4.0/
dc.date.updated2020-06-07T23:48:36Z
dc.description.versionVersion of Record (VoR)
gro.rights.copyright© 2019 The Authors. Australasian Journal on Ageing published by John Wiley & Sons Australia, Ltd on behalf of AJA Inc. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
gro.hasfulltextFull Text
gro.griffith.authorFitzgerald, Anneke A.


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