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dc.contributor.authorHowells, SR
dc.contributor.authorCornwell, PL
dc.contributor.authorWard, EC
dc.contributor.authorKuipers, P
dc.date.accessioned2020-06-30T03:41:03Z
dc.date.available2020-06-30T03:41:03Z
dc.date.issued2020
dc.identifier.issn1754-9515
dc.identifier.doi10.1080/17549507.2020.1765020
dc.identifier.urihttp://hdl.handle.net/10072/395024
dc.description.abstractPurpose: Literature to date describing the lived experience of dysphagia has predominantly focussed on the clinical populations of stroke and head and neck cancer. The current study aimed to understand the experience of people with dysphagia of varying aetiologies living at home in the community. Method: Using a qualitative descriptive approach grounded in phenomenology, individuals with dysphagia were interviewed (n = 15) about their experiences living with and managing dysphagia at home. Result: Thematic analysis revealed an overarching theme of “Journey of discovery – learning to live with dysphagia,” which described the process of managing dysphagia at home. This theme was characterised by three subthemes: (1) The story of dysphagia; (2) Engaging with support networks; and (3) Limited community awareness of dysphagia. Conclusion: This study highlights a range of psychosocial impacts individuals with dysphagia living at home may experience. Participants described how managing other health conditions alongside dysphagia influenced their perspectives about dysphagia. speech-language pathologists must consider individual client health priorities and provide support for not just the physical but also the psychosocial needs of clients. The reduced profile of dysphagia in our communities continues to be an ongoing barrier for clients with dysphagia and their families.
dc.description.peerreviewedYes
dc.languageen
dc.publisherInforma UK Limited
dc.relation.ispartofpagefrom1
dc.relation.ispartofpageto12
dc.relation.ispartofjournalInternational Journal of Speech-Language Pathology
dc.subject.fieldofresearchPsychology
dc.subject.fieldofresearchSocial Work
dc.subject.fieldofresearchClinical Sciences
dc.subject.fieldofresearchCognitive Sciences
dc.subject.fieldofresearchLinguistics
dc.subject.fieldofresearchcode1701
dc.subject.fieldofresearchcode1607
dc.subject.fieldofresearchcode1103
dc.subject.fieldofresearchcode1702
dc.subject.fieldofresearchcode2004
dc.titleClient perspectives on living with dysphagia in the community
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationHowells, SR; Cornwell, PL; Ward, EC; Kuipers, P, Client perspectives on living with dysphagia in the community, International Journal of Speech-Language Pathology, pp. 1-12
dc.date.updated2020-06-30T01:53:25Z
dc.description.versionPost-print
gro.description.notepublicThis publication has been entered into Griffith Research Online as an Advanced Online Version.
gro.rights.copyrightThis is an Author's Accepted Manuscript of an article published in the International Journal of Speech-Language Pathology, 11 Jun 2020, copyright Taylor & Francis, available online at: https://doi.org/10.1080/17549507.2020.1765020
gro.hasfulltextFull Text
gro.griffith.authorKuipers, Pim
gro.griffith.authorCornwell, Petrea
gro.griffith.authorHowells, Simone R.


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