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dc.contributor.authorBeesley, Vanessa L
dc.contributor.authorTurner, Jane
dc.contributor.authorChan, Raymond J
dc.contributor.authorYates, Patsy
dc.contributor.authorGordon, Louisa G
dc.contributor.authorBurge, Matthew
dc.contributor.authorEastgate, Melissa A
dc.contributor.authorStaneva, Aleksandra A
dc.contributor.authorNorthfield, Sarah
dc.contributor.authorBeebe, Hanna
dc.contributor.authorWyld, David K
dc.contributor.authorNeale, Rachel E
dc.date.accessioned2021-05-20T00:12:43Z
dc.date.available2021-05-20T00:12:43Z
dc.date.issued2020
dc.identifier.issn1462-3889
dc.identifier.doi10.1016/j.ejon.2020.101729
dc.identifier.urihttp://hdl.handle.net/10072/398159
dc.description.abstractPurpose: Patients with pancreatic cancer have extremely high unmet psychological and physical needs. Family carers of these patients have even higher levels of distress than patients. Our purpose was to assess the feasibility and acceptability of a counselling intervention in patients diagnosed with pancreatic cancer and their carers. Methods: We conducted a single-arm feasibility study of the PREPARES (Patients and RElatives affected by PAncreatic cancer: Referral, Education and Support) pilot intervention. Patient and carer participants received up to nine counselling sessions delivered by a trained nurse via telephone and/or telehealth technology. The intervention, informed by self-efficacy theory, involved components to assess and address care needs, and provide feedback to clinicians. Feasibility was measured using participation and retention rates. Participants completed semi-structured interviews at the end of the intervention about acceptability. These were analysed using thematic analysis. Results: Twelve people participated: five patients and seven carers (38% and 50% participation rates respectively). Most participants (eight) completed all nine counselling sessions; two chose to receive fewer sessions and two were discontinued requiring more intensive psychiatric support. The intervention was highly acceptable. Participants unanimously preferred the telephone over video-conferencing and to receive counselling separately from their carer/patient. The main perceived benefits were emotional support, the nurse-counsellors’ knowledge, care coordination and personalised care. Suggested improvements included a welcome pack about their nurse-counsellor and that sessions should continue beyond nine sessions if required. Conclusions: The PREPARES intervention was feasible and highly acceptable. This low-cost intervention provided much-needed support to people affected by this devastating disease.
dc.description.peerreviewedYes
dc.languageEnglish
dc.language.isoeng
dc.publisherElsevier
dc.relation.ispartofpagefrom101729
dc.relation.ispartofjournalEuropean Journal of Oncology Nursing
dc.relation.ispartofvolume46
dc.subject.fieldofresearchNursing
dc.subject.fieldofresearchOncology and carcinogenesis
dc.subject.fieldofresearchcode4205
dc.subject.fieldofresearchcode3211
dc.subject.keywordsScience & Technology
dc.subject.keywordsLife Sciences & Biomedicine
dc.subject.keywordsCarers
dc.titleSupporting patients and carers affected by pancreatic cancer: A feasibility study of a counselling intervention
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationBeesley, VL; Turner, J; Chan, RJ; Yates, P; Gordon, LG; Burge, M; Eastgate, MA; Staneva, AA; Northfield, S; Beebe, H; Wyld, DK; Neale, RE, Supporting patients and carers affected by pancreatic cancer: A feasibility study of a counselling intervention, European Journal of Oncology Nursing, 2020, 46, pp. 101729
dcterms.dateAccepted2020-02-05
dcterms.licensehttp://creativecommons.org/licenses/by-nc-nd/4.0/
dc.date.updated2020-10-07T03:28:45Z
dc.description.versionAccepted Manuscript (AM)
gro.rights.copyright© 2020 Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International Licence (http://creativecommons.org/licenses/by-nc-nd/4.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, providing that the work is properly cited.
gro.hasfulltextFull Text
gro.griffith.authorChan, Ray


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