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  • The health information practices of people living with chronic health conditions: Implications for health literacy

    Author(s)
    Lloyd, Annemaree
    Bonner, Ann
    Dawson-Rose, Carol
    Griffith University Author(s)
    Bonner, Ann J.
    Year published
    2014
    Metadata
    Show full item record
    Abstract
    The health literacy concept is often limited to descriptions of a patient’s functional relationship with text. This description does not acknowledge the range of information sources that people draw from in order to make informed decision about their health and treatment. A socio-cultural understanding of the practice of health literacy and the construction of the health information landscape is described, and draws from two studies of people with two different but complex and life-threatening chronic health conditions: chronic kidney disease and human immunodeficiency virus. Health information is experienced by patients as ...
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    The health literacy concept is often limited to descriptions of a patient’s functional relationship with text. This description does not acknowledge the range of information sources that people draw from in order to make informed decision about their health and treatment. A socio-cultural understanding of the practice of health literacy and the construction of the health information landscape is described, and draws from two studies of people with two different but complex and life-threatening chronic health conditions: chronic kidney disease and human immunodeficiency virus. Health information is experienced by patients as a chronic health condition landscape, and develops from three information sources, namely epistemic, social and corporeal sources. Participants in both studies used activities that involved orienting and sharing activities to understand the landscape that was used to inform their decision making. These findings challenge the traditional conceptions of health literacy and suggest an approach that views the landscape of chronic illness as being socially, physically and contextually constructed. This suggests recasting health literacy away from a sole interest in skills and towards understanding how information practices facilitate people becoming health literate.
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    Journal Title
    Journal of Librarianship and Information Science
    Volume
    46
    Issue
    3
    DOI
    https://doi.org/10.1177/0961000613486825
    Subject
    Information systems
    Library and information studies
    Science & Technology
    Information Science & Library Science
    Chronic kidney disease
    health literacy
    Publication URI
    http://hdl.handle.net/10072/400107
    Collection
    • Journal articles

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