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  • Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID

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    Author(s)
    Helverschou, Sissel Berge
    Bakken, Trine Lise
    Berge, Heidi
    Bjorgen, Tale Gjertine
    Botheim, Henrik
    Hellerud, Jane Askeland
    Helseth, Ingunn
    Hove, Oddbjorn
    Johansen, Per Anders
    Kildahl, Arvid Nikolai
    Ludvigsen, Linn Beate
    Nygaard, Sissel
    Rysstad, Anne
    Wigaard, Elisabeth
    Howlin, Patricia
    Griffith University Author(s)
    Howlin, Patricia
    Year published
    2020
    Metadata
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    Abstract
    Background: The identification and treatment of psychiatric disorders in individuals with autism spectrum disorders (ASD) and ID presents many challenges. We describe the development of a professional network, together with a standardized protocol for clinical assessment, designed to promote clinical competence and professional development in eight clinical centers responsible for providing mental health services to autistic individuals with ID across all four health regions of Norway. Specific aims to describe: (1) patterns of psychiatric and behavior problems in patients treated by the network, (2) patterns of change over ...
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    Background: The identification and treatment of psychiatric disorders in individuals with autism spectrum disorders (ASD) and ID presents many challenges. We describe the development of a professional network, together with a standardized protocol for clinical assessment, designed to promote clinical competence and professional development in eight clinical centers responsible for providing mental health services to autistic individuals with ID across all four health regions of Norway. Specific aims to describe: (1) patterns of psychiatric and behavior problems in patients treated by the network, (2) patterns of change over time, and (3) the relationship between psychiatric disorders and behavior problems. Method: A standardized protocol was used to assess individual progress in 132 patients (inpatients and outpatients) with autism and ID over 2 years (at referral (T1), after 1 year (T2), and after 2 years (T3)). Changes in psychiatric symptoms and behavior problems were assessed with the Psychopathology in Autism Checklist (PAC) and Aberrant Behavior Checklist (ABC). Results: Patients showed significant (p < .001) improvements from T1 to T2 on the psychosis, depression and anxiety subscales of the PAC, but no significant improvement on the obsessive compulsive disorder (OCD) subscale. Improvements were maintained from T2 to T3. Patients showed significant (p < .01) improvements on the ABC total score and on all ABC subscales except inappropriate speech from T1 to T2; these improvements were maintained from T2 to T3. Discussion: The combination of a professional network and a standardized protocol for clinical assessment has promise as a strategy for improving professional competence and facilitating specialized mental health services for autistic individuals with ID and psychiatric disorders across an extensive geographical area.
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    Journal Title
    Journal of Policy and Practice in Intellectual Disabilities
    DOI
    https://doi.org/10.1111/jppi.12366
    Copyright Statement
    © 2020 The Authors. Journal of Policy and Practice in Intellectual Disabilities published by International Association for the Scientific Study of Intellectual and Developmental Disabilities and Wiley Periodicals LLC. This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial‐NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
    Note
    This publication has been entered as an advanced online version in Griffith Research Online.
    Subject
    Social work
    Psychology
    Science & Technology
    Life Sciences & Biomedicine
    Health Policy & Services
    Rehabilitation
    Health Care Sciences & Services
    Publication URI
    http://hdl.handle.net/10072/400643
    Collection
    • Journal articles

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