Show simple item record

dc.contributor.authorMitchell, AE
dc.contributor.authorMorawska, A
dc.contributor.authorKirby, G
dc.contributor.authorMcGill, J
dc.contributor.authorComan, D
dc.contributor.authorInwood, A
dc.date.accessioned2021-04-19T03:32:38Z
dc.date.available2021-04-19T03:32:38Z
dc.date.issued2021
dc.identifier.issn0146-8693
dc.identifier.doi10.1093/jpepsy/jsaa100
dc.identifier.urihttp://hdl.handle.net/10072/403818
dc.description.abstractOBJECTIVE: Families of children with phenylketonuria (PKU) report child emotional and behavioral problems, parenting stress, and parenting difficulties, which are associated with worse health-related quality of life. This study aimed to examine acceptability and feasibility of a brief, group-based parenting program (Healthy Living Triple P) for families of children with PKU. METHODS: An uncontrolled nonrandomized trial design was used. Families of children aged 2-12 years (N = 17) completed questionnaire measures assessing child behavior and impact of PKU on quality of life (primary outcomes), and parenting behavior, self-efficacy and stress, and children's behavioral and emotional adjustment (secondary outcomes). Routinely collected blood phenylalanine (Phe) levels were obtained from the treating team. Parents selected two child behaviors as targets for change. The intervention comprised two, 2-hr group sessions delivered face-to-face or online. Assessment was repeated at 4-week postintervention (T2) and 4-month follow-up (T3). RESULTS: Attrition was low and parent satisfaction with the intervention (face-to-face and online) was high. All families achieved success with one or both child behavior goals, and 75% of families achieved 100% success with both behavior goals by T3; however, there was no change in health-related quality of life. There were moderate improvements in parent-reported ineffective parenting (total score, d = 0.87, 95% CI -1.01 to 2.75) and laxness (d = 0.59, 95% CI -1.27 to 2.46), but no effects on parenting stress or children's adjustment. Phe levels improved by 6month post-intervention for children with elevated preintervention levels. CONCLUSIONS: Results support intervention acceptability and feasibility. A randomized controlled trial is warranted to establish intervention efficacy.
dc.description.peerreviewedYes
dc.languageeng
dc.publisherOxford University Press (OUP)
dc.relation.ispartofpagefrom208
dc.relation.ispartofpageto218
dc.relation.ispartofissue2
dc.relation.ispartofjournalJournal of pediatric psychology
dc.relation.ispartofvolume46
dc.subject.fieldofresearchPsychology
dc.subject.fieldofresearchcode52
dc.subject.keywordsbehavior problems
dc.subject.keywordschronic illness
dc.subject.keywordsgenetics and genetic disorders
dc.subject.keywordsintervention outcome
dc.subject.keywordsparenting
dc.titleTriple P for Parents of Children with Phenylketonuria: A Nonrandomized Trial
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationMitchell, AE; Morawska, A; Kirby, G; McGill, J; Coman, D; Inwood, A, Triple P for Parents of Children with Phenylketonuria: A Nonrandomized Trial, Journal of pediatric psychology, 2021, 46 (2), pp. 208-218
dcterms.dateAccepted2020-09-30
dc.date.updated2021-04-19T03:31:50Z
gro.hasfulltextNo Full Text
gro.griffith.authorMitchell, Amy


Files in this item

FilesSizeFormatView

There are no files associated with this item.

This item appears in the following Collection(s)

  • Journal articles
    Contains articles published by Griffith authors in scholarly journals.

Show simple item record