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  • Diaries for Intensive Care Unit Survivors (DISCUSS): Perspectives of patients and family members regarding psychological support

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    Aitken202129-Accepted.pdf (26.40Kb)
    File version
    Accepted Manuscript (AM)
    Author(s)
    Aitken, Leanne M
    Rattray, Janice
    Kenardy, Justin
    Hull, Alastair M
    Ullman, Amanda
    Le Brocque, Robyne
    Mitchell, Marion
    Davis, Chelsea
    Macfarlane, Bonnie
    Griffith University Author(s)
    Aitken, Leanne M.
    Ullman, Amanda J.
    Mitchell, Marion L.
    MacFarlane, Bonnie
    Year published
    2016
    Metadata
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    Abstract
    Diaries summarising care in the intensive care unit (ICU) are routine practice in some countries, although format and method of delivery vary. Evidence to support diary use is limited and uptake by patients and relatives is infrequent raising questions of acceptance and generalisability. The purpose of this study was to identify whether distress post-ICU influences patients’ and relatives’ choice of receiving a diary and what format and method of diary delivery was preferred. An exploratory mixed-methods study was undertaken in a Brisbane tertiary hospital with general ICU patients admitted for ≥3 days and their relatives. ...
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    Diaries summarising care in the intensive care unit (ICU) are routine practice in some countries, although format and method of delivery vary. Evidence to support diary use is limited and uptake by patients and relatives is infrequent raising questions of acceptance and generalisability. The purpose of this study was to identify whether distress post-ICU influences patients’ and relatives’ choice of receiving a diary and what format and method of diary delivery was preferred. An exploratory mixed-methods study was undertaken in a Brisbane tertiary hospital with general ICU patients admitted for ≥3 days and their relatives. Semi-structured interviews were conducted 3–5 months after ICU discharge. Psychological distress was assessed using the Kessler-10 and Post-traumatic Stress Disorder Symptom Checklist–Civilian Version 5. Perceptions of benefit of an ICU diary were assessed using a four-point Likert scale. Differences were examined using Fisher's exact tests (p < 0.05). Fifty-three patients and 22 relatives consented to participation with 22 patients and 19 relatives completing interviews prior to reaching data saturation. Patients were usually male (63%) and aged 53 ± 14 years. Psychological distress was evident in 25 (47%) patients and 5 (23%) relatives. The majority of patients (40, 75%) and relatives (17, 77%) considered a diary as beneficial. There were no statistically significant differences in the psychological health of participants who perceived diaries as beneficial and those who did not. Participants raised similar issues regarding diaries, although with diverse opinions. Themes included: memory and recall; level of detail; communication within ICU, shared memory; variable timing; staff workload; impact on stress; uncertainty related to survival; and diary ownership. Psychological distress was not related to patient and relative preferences of receiving an ICU diary. Although common themes related to diaries were expressed by participants, details were diverse. Future interventions to aid psychological recovery need to account for this diversity.
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    Conference Title
    Australian Critical Care
    Volume
    29
    Issue
    2
    DOI
    https://doi.org/10.1016/j.aucc.2015.12.003
    Copyright Statement
    © 2016 Australian College of Critical Care Nurses Ltd. Published by Elsevier Australia. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International Licence (http://creativecommons.org/licenses/by-nc-nd/4.0/) which permits unrestricted, non-commercial use, distribution and reproduction in any medium, providing that the work is properly cited.
    Subject
    Clinical sciences
    Nursing
    Science & Technology
    Life Sciences & Biomedicine
    Critical Care Medicine
    Publication URI
    http://hdl.handle.net/10072/404338
    Collection
    • Conference outputs

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