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  • Experiences of compassion among family carers of older adults: Qualitative content analysis of survey free-text comments

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    Embargoed until: 2022-06-07
    File version
    Accepted Manuscript (AM)
    Author(s)
    Murfield, Jenny
    Moyle, Wendy
    O'Donovan, Analise
    Griffith University Author(s)
    Moyle, Wendy
    Murfield, Jenny E.
    O'Donovan, Analise
    Year published
    2021
    Metadata
    Show full item record
    Abstract
    OBJECTIVES: To provide qualitative insight into the experiences of compassion (to self, to others and from others) among family carers of older adults by exploring the written responses provided within a cross-sectional survey that asked about carers' levels of compassion, mindfulness, emotion regulation, coping strategies and psychological health. METHODS: Family carers of adults aged ≥65 years from around the world completed the survey between July and December 2019. To provide carers with an opportunity to describe experiences in their own words and expand on issues beyond the limits of closed-response items, the survey ...
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    OBJECTIVES: To provide qualitative insight into the experiences of compassion (to self, to others and from others) among family carers of older adults by exploring the written responses provided within a cross-sectional survey that asked about carers' levels of compassion, mindfulness, emotion regulation, coping strategies and psychological health. METHODS: Family carers of adults aged ≥65 years from around the world completed the survey between July and December 2019. To provide carers with an opportunity to describe experiences in their own words and expand on issues beyond the limits of closed-response items, the survey included eight free-text boxes. These appeared after each self-report measure and at the end of the survey. From a total of 127 carers providing 504 written responses, inductive qualitative content analysis identified and evaluated 245 comments from 105 family carers' that were about their experiences of compassion (to self, to others and from others). RESULTS: Some family carers perceived a lack of compassion, both for themselves and from others, and several barriers to carers' openness to receiving compassion were identified. Factors influencing carers' compassion to others in general included how carers were feeling themselves, the person it was directed towards and the situation. Within the caregiving relationship specifically, this included care recipients' level of need and behaviour. CONCLUSIONS: Findings provide qualitative understanding about family carers' realities of compassion (to self, to others and from others) within their role and highlight the applicability and warranted focus of compassion-based approaches within family caregiving research and practice.
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    Journal Title
    Scandinavian Journal of Caring Sciences
    DOI
    https://doi.org/10.1111/scs.13010
    Copyright Statement
    © 2021 Nordic College of Caring Science. This is the peer reviewed version of the following article: Experiences of compassion among family carers of older adults: Qualitative content analysis of survey free-text comments,Scandinavian Journal of Caring Sciences, 2021, which has been published in final form at https://doi.org/10.1111/scs.13010. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving (http://olabout.wiley.com/WileyCDA/Section/id-828039.html)
    Note
    This publication has been entered in Griffith Research Online as an advanced online version.
    Subject
    Nursing
    Social work
    Sociology
    caregivers
    compassion
    dementia
    qualitative
    self-report
    Publication URI
    http://hdl.handle.net/10072/405094
    Collection
    • Journal articles

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