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dc.contributor.authorMcKeon, G
dc.contributor.authorParker, S
dc.contributor.authorWarren, N
dc.contributor.authorScott, JG
dc.date.accessioned2021-10-07T01:00:20Z
dc.date.available2021-10-07T01:00:20Z
dc.date.issued2021
dc.identifier.issn0895-0172
dc.identifier.doi10.1176/appi.neuropsych.20030049
dc.identifier.urihttp://hdl.handle.net/10072/408679
dc.description.abstractObjective: The authors examined patients’ perceptions of the factors affecting their recovery from anti-N-methyl-D-aspartate receptor (anti-NMDAR) encephalitis, which is a rare, severe immune-mediated neurological disorder. Methods: Seven patients completed semistructured interviews exploring their experience of recovery. Participants were interviewed between 7 and 41 months after the initia-tion of treatment. Interviews were transcribed and subjected to qualitative content analysis. Results: Facilitators of recovery included the presence of a support system and treatment-related factors. Barriers to recovery included perceived psychiatric stigma, insufficient illness education, and lifestyle disruptions to accommo-date ongoing treatment. Adverse physical, psychological, and neurocognitive sequelae of anti-NMDAR encephalitis con-tinued to affect participants’ daily functioning. Most participants described strategies to manage neurocognitive deficits, fatigue, and anxiety. Conclusions: Anti-NMDAR encephalitis contributes to per-sistent burden on patients, their families, and health services after the resolution of acute symptoms. Physical, psycho-logical, and cognitive changes contribute to long-term disease morbidity. To optimize recovery and reduce disability, further attention must be directed toward illness education, reducing stigma, and role disruption. Longer-term disability support may benefit those who do not fully recover.
dc.description.peerreviewedYes
dc.languageeng
dc.publisherAmerican Psychiatric Association Publishing
dc.relation.ispartofpagefrom57
dc.relation.ispartofpageto63
dc.relation.ispartofissue1
dc.relation.ispartofjournalJournal of Neuropsychiatry and Clinical Neurosciences
dc.relation.ispartofvolume33
dc.subject.fieldofresearchClinical sciences
dc.subject.fieldofresearchcode3202
dc.subject.keywordsAnti-NMDA
dc.subject.keywordsCognition Disorders
dc.subject.keywordsNeuroimmunology
dc.subject.keywordsNeuropsychology
dc.titleThe patient experience of recovery following anti-nmda receptor encephalitis: A qualitative content analysis
dc.typeJournal article
dc.type.descriptionC1 - Articles
dcterms.bibliographicCitationMcKeon, G; Parker, S; Warren, N; Scott, JG, The patient experience of recovery following anti-nmda receptor encephalitis: A qualitative content analysis, Journal of Neuropsychiatry and Clinical Neurosciences, 2021, 33 (1), pp. 57-63
dc.date.updated2021-10-06T04:16:08Z
gro.hasfulltextNo Full Text
gro.griffith.authorParker, Stephen D.


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