dc.contributor.author | McKeon, G | |
dc.contributor.author | Parker, S | |
dc.contributor.author | Warren, N | |
dc.contributor.author | Scott, JG | |
dc.date.accessioned | 2021-10-07T01:00:20Z | |
dc.date.available | 2021-10-07T01:00:20Z | |
dc.date.issued | 2021 | |
dc.identifier.issn | 0895-0172 | |
dc.identifier.doi | 10.1176/appi.neuropsych.20030049 | |
dc.identifier.uri | http://hdl.handle.net/10072/408679 | |
dc.description.abstract | Objective: The authors examined patients’ perceptions of the factors affecting their recovery from anti-N-methyl-D-aspartate receptor (anti-NMDAR) encephalitis, which is a rare, severe immune-mediated neurological disorder. Methods: Seven patients completed semistructured interviews exploring their experience of recovery. Participants were interviewed between 7 and 41 months after the initia-tion of treatment. Interviews were transcribed and subjected to qualitative content analysis. Results: Facilitators of recovery included the presence of a support system and treatment-related factors. Barriers to recovery included perceived psychiatric stigma, insufficient illness education, and lifestyle disruptions to accommo-date ongoing treatment. Adverse physical, psychological, and neurocognitive sequelae of anti-NMDAR encephalitis con-tinued to affect participants’ daily functioning. Most participants described strategies to manage neurocognitive deficits, fatigue, and anxiety. Conclusions: Anti-NMDAR encephalitis contributes to per-sistent burden on patients, their families, and health services after the resolution of acute symptoms. Physical, psycho-logical, and cognitive changes contribute to long-term disease morbidity. To optimize recovery and reduce disability, further attention must be directed toward illness education, reducing stigma, and role disruption. Longer-term disability support may benefit those who do not fully recover. | |
dc.description.peerreviewed | Yes | |
dc.language | eng | |
dc.publisher | American Psychiatric Association Publishing | |
dc.relation.ispartofpagefrom | 57 | |
dc.relation.ispartofpageto | 63 | |
dc.relation.ispartofissue | 1 | |
dc.relation.ispartofjournal | Journal of Neuropsychiatry and Clinical Neurosciences | |
dc.relation.ispartofvolume | 33 | |
dc.subject.fieldofresearch | Clinical sciences | |
dc.subject.fieldofresearchcode | 3202 | |
dc.subject.keywords | Anti-NMDA | |
dc.subject.keywords | Cognition Disorders | |
dc.subject.keywords | Neuroimmunology | |
dc.subject.keywords | Neuropsychology | |
dc.title | The patient experience of recovery following anti-nmda receptor encephalitis: A qualitative content analysis | |
dc.type | Journal article | |
dc.type.description | C1 - Articles | |
dcterms.bibliographicCitation | McKeon, G; Parker, S; Warren, N; Scott, JG, The patient experience of recovery following anti-nmda receptor encephalitis: A qualitative content analysis, Journal of Neuropsychiatry and Clinical Neurosciences, 2021, 33 (1), pp. 57-63 | |
dc.date.updated | 2021-10-06T04:16:08Z | |
gro.hasfulltext | No Full Text | |
gro.griffith.author | Parker, Stephen D. | |