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dc.contributor.authorLong, DA
dc.contributor.authorFink, EL
dc.date.accessioned2021-11-22T02:05:06Z
dc.date.available2021-11-22T02:05:06Z
dc.date.issued2021
dc.identifier.issn2224-4336en_US
dc.identifier.doi10.21037/tp-21-61en_US
dc.identifier.urihttp://hdl.handle.net/10072/410275
dc.description.abstractMost children are surviving critical illness in highly resourced pediatric intensive care units (PICUs). However, in research studies, many of these children survive with multi-domain health sequelae that has the potential to affect development over many years, termed post-intensive care syndrome-pediatrics (PICS-p). Clinically, there are no recommendations for the assessment and follow-up of children with critical illness as exists for the premature neonatal and congenital heart disease populations. In research studies, primary and secondary outcomes are largely assessed at or prior to hospital discharge, disregarding post-hospital outcomes important to PICU stakeholders. Incorporating longer term outcomes into clinical and research programs, however, can no longer be overlooked. Barriers to outcomes assessments are varied and generalized vs. individualized, but some PICU centers are discovering how to overcome them and are providing this service to families—sometimes specific populations—in need. Research programs and funders are increasingly recognizing the value and need to assess long-term outcomes post-PICU. Finally, we should seek the strong backing of the PICU community and families to insist that long-term outcomes become our new clinical standard of care. PICUs should consider development of a multicenter, multinational collaborative to assess clinical outcomes and optimize care delivery and patient and family outcomes. The aim of this review is to present the potential considerations of implementing long-term clinical follow-up following pediatric critical illness.en_US
dc.description.peerreviewedYesen_US
dc.publisherAME Publishing Companyen_US
dc.relation.ispartofpagefrom2858en_US
dc.relation.ispartofpageto2874en_US
dc.relation.ispartofissue10en_US
dc.relation.ispartofjournalTranslational Pediatricsen_US
dc.relation.ispartofvolume10en_US
dc.subject.fieldofresearchPaediatricsen_US
dc.subject.fieldofresearchcode3213en_US
dc.titleTransitions from short to long-term outcomes in pediatric critical care: considerations for clinical practiceen_US
dc.typeJournal articleen_US
dc.type.descriptionC1 - Articlesen_US
dcterms.bibliographicCitationLong, DA; Fink, EL, Transitions from short to long-term outcomes in pediatric critical care: considerations for clinical practice, Translational Pediatrics, 2021, 10 (10), pp. 2858-2874en_US
dcterms.licensehttps://creativecommons.org/licenses/by-nc-nd/4.0/en_US
dc.date.updated2021-11-17T04:37:23Z
dc.description.versionVersion of Record (VoR)en_US
gro.rights.copyright© The Author(s) 2021. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs 4.0 International (CC BY-NC-ND 4.0) License, which permits unrestricted, non-commercial use, distribution and reproduction in any medium, providing that the work is properly cited.en_US
gro.hasfulltextFull Text
gro.griffith.authorLong, Debbie A.


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