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dc.contributor.authorFrame, Abbey
dc.contributor.authorGrant, Janie Busby
dc.contributor.authorLayard, Elizabeth
dc.contributor.authorScholz, Brett
dc.contributor.authorLaw, Elly
dc.contributor.authorRanse, Kristen
dc.contributor.authorMitchell, Imogen
dc.contributor.authorChapman, Michael
dc.description.abstractEnd-of-life care involves treatment and support offered to terminally ill individuals and their caregivers. Effective communication and decision-making, illness and symptom management, relationship with doctors, characteristics of the health care team, and the involvement and needs of caregivers have all been proposed to contribute to the quality of the end-of-life experience. This study sought to establish bereaved caregivers’ experiences of the quality of the elements of end-of-life care delivered to their loved ones. Bereaved caregivers who had lost a loved one who was cared for in an acute care University-affiliated hospital, with 670 beds, located in the Australian Capital Territory during the previous 6−12 months (N=91), were surveyed using a modified version of the Canadian Health Care Evaluation Project questionnaire. The findings indicated that the bereaved caregivers were generally very satisfied with their loved one’s end-of-life care. The age of the caregiver, the preferred location of death for both patient and caregiver, if death was expected, and religious affiliation were associated with satisfaction of the end-of-life care delivered. Key areas for improvement of end-of-life care included factors related to the relationships between doctors and those receiving care, characteristics of the health care team, illness management, communication and decision-making, and the involvement of caregivers. These findings have significant implications for this hospital and those seeking to improve outcomes in end-of-life care settings more widely, by providing baseline data on caregiver-evaluated care quality and identifying high-priority areas for targeted intervention.en_US
dc.publisherRoutledge: Taylor & Francis Groupen_US
dc.relation.ispartofjournalProgress in Palliative Careen_US
dc.subject.fieldofresearchHealth services and systemsen_US
dc.subject.fieldofresearchPalliative careen_US
dc.subject.fieldofresearchHealth policyen_US
dc.subject.keywordsScience & Technologyen_US
dc.subject.keywordsLife Sciences & Biomedicineen_US
dc.subject.keywordsPublic, Environmental & Occupational Healthen_US
dc.subject.keywordsPalliative careen_US
dc.subject.keywordsEnd-of-life careen_US
dc.titleBereaved caregivers' satisfaction with end-of-life careen_US
dc.typeJournal articleen_US
dc.type.descriptionC1 - Articlesen_US
dcterms.bibliographicCitationFrame, A; Grant, JB; Layard, E; Scholz, B; Law, E; Ranse, K; Mitchell, I; Chapman, M, Bereaved caregivers' satisfaction with end-of-life care, Progress in Palliative Care, 2021en_US
gro.description.notepublicThis publication has been entered as an advanced online version in Griffith Research Online.en_US
gro.hasfulltextNo Full Text
gro.griffith.authorRanse, Kristen

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