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dc.contributor.authorIedema, Rick
dc.contributor.authorAllen, Suellen
dc.contributor.authorBritton, Kate
dc.contributor.authorPiper, Donella
dc.contributor.authorBaker, Andrew
dc.contributor.authorGrbich, Carol
dc.contributor.authorAllan, Alfred
dc.contributor.authorJones, Liz
dc.contributor.authorTuckett, Anthony
dc.contributor.authorWilliams, Allison
dc.contributor.authorManias, Elizabeth
dc.contributor.authorGallagher, Thomas H
dc.date.accessioned2017-05-03T11:40:53Z
dc.date.available2017-05-03T11:40:53Z
dc.date.issued2011
dc.date.modified2012-05-15T22:28:26Z
dc.identifier.issn1756-1833
dc.identifier.doi10.1136/bmj.d4423
dc.identifier.urihttp://hdl.handle.net/10072/43277
dc.description.abstractAbstract Objectives To investigate patients' and family members' perceptions and experiences of disclosure of healthcare incidents and to derive principles of effective disclosure. Design Retrospective qualitative study based on 100 semi-structured, in depth interviews with patients and family members. Setting Nationwide multisite survey across Australia. Participants 39 patients and 80 family members who were involved in high severity healthcare incidents (leading to death, permanent disability, or long term harm) and incident disclosure. Recruitment was via national newspapers (43%), health services where the incidents occurred (28%), two internet marketing companies (27%), and consumer organisations (2%). Main outcome measures Participants' recurrent experiences and concerns expressed in interviews. Results Most patients and family members felt that the health service incident disclosure rarely met their needs and expectations. They expected better preparation for incident disclosure, more shared dialogue about what went wrong, more follow-up support, input into when the time was ripe for closure, and more information about subsequent improvement in process. This analysis provided the basis for the formulation of a set of principles of effective incident disclosure. Conclusions Despite growing prominence of open disclosure, discussion about healthcare incidents still falls short of patient and family member expectations. Healthcare organisations and providers should strengthen their efforts to meet patients' (and family members') needs and expectations.
dc.description.peerreviewedYes
dc.description.publicationstatusYes
dc.format.extent382415 bytes
dc.format.mimetypeapplication/pdf
dc.languageEnglish
dc.language.isoeng
dc.publisherBMJ Group
dc.publisher.placeUnited Kingdom
dc.relation.ispartofstudentpublicationN
dc.relation.ispartofpagefrom1
dc.relation.ispartofpageto9
dc.relation.ispartofjournalBMJ: British Medical Journal
dc.relation.ispartofvolume343
dc.rights.retentionY
dc.subject.fieldofresearchClinical sciences
dc.subject.fieldofresearchcode3202
dc.titlePatients' and family members' views on how clinicians enact and how they should enact incident disclosure: the "100 patient stories" qualitative study
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
gro.rights.copyright© The Author(s) 2011. The attached file is reproduced here in accordance with the copyright policy of the publisher. For information about this journal please refer to the journal’s website or contact the authors.
gro.date.issued2011
gro.hasfulltextFull Text
gro.griffith.authorJones, Liz S.


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