Show simple item record

dc.contributor.authorSav, Adem
dc.contributor.authorKendall, Elizabeth
dc.contributor.authorMcMillan, Sara S
dc.contributor.authorKelly, Fiona
dc.contributor.authorWhitty, Jennifer A
dc.contributor.authorKing, Michelle A
dc.contributor.authorWheeler, Amanda J
dc.date.accessioned2023-08-15T03:05:26Z
dc.date.available2023-08-15T03:05:26Z
dc.date.issued2013
dc.date.modified2013-11-22T03:12:25Z
dc.identifier.issn0966-0410
dc.identifier.doi10.1111/hsc.12052
dc.identifier.urihttp://hdl.handle.net/10072/54134
dc.description.abstractThe aim of this study was to explore treatment burden among people with a variety of chronic conditions and comorbidities and their unpaid carers. The burden of living with ongoing chronic illness has been well established. However, the burden associated with proactively treating and managing chronic illness, commonly referred to as 'treatment burden', is less understood. This study helps to bridge this gap in our understanding by providing an in-depth analysis of qualitative data collected from a large sample of adults from diverse backgrounds and with various chronic conditions. Using semi-structured in-depth interviews, data were collected with a large sample of 97 participants that included a high representation of people from culturally and linguistically diverse backgrounds and indigenous populations across four regions of Australia. Interviews were conducted during May-October 2012, either face to face (n = 49) or over the telephone (n = 48) depending on the participant's preference and location. Data were analysed using an iterative thematic approach and the constant comparison method. The findings revealed four interrelated components of treatment burden: financial burden, time and travel burden, medication burden and healthcare access burden. However, financial burden was the most problematic component with the cost of treatment being significant for most people. Financial burden had a detrimental impact on a person's use of medication and also exacerbated other types of burden such as access to healthcare services and the time and travel associated with treatment. The four components of treatment burden operated in a cyclical manner and although treatment burden was objective in some ways (number of medications, and time to access treatment), it was also a subjective experience. Overall, this study underscores the urgent need for healthcare professionals to identify patients overwhelmed by their treatment and develop 'individualised' treatment options to alleviate treatment burden.
dc.description.peerreviewedYes
dc.description.publicationstatusYes
dc.languageEnglish
dc.language.isoeng
dc.publisherWiley-Blackwell Publishing
dc.publisher.placeUnited Kingdom
dc.relation.ispartofstudentpublicationN
dc.relation.ispartofpagefrom665
dc.relation.ispartofpageto674
dc.relation.ispartofissue6
dc.relation.ispartofjournalHealth and Social Care in the Community
dc.relation.ispartofvolume21
dc.rights.retentionY
dc.subject.fieldofresearchSocial work
dc.subject.fieldofresearchHealth services and systems
dc.subject.fieldofresearchPublic health
dc.subject.fieldofresearchcode4409
dc.subject.fieldofresearchcode4203
dc.subject.fieldofresearchcode4206
dc.title'You say treatment, I say hard work': treatment burden among people with chronic illness and their carers in Australia
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
dcterms.bibliographicCitationSav, A; Kendall, E; McMillan, SS; Kelly, F; Whitty, JA; King, MA; Wheeler, AJ, 'You say treatment, I say hard work': treatment burden among people with chronic illness and their carers in Australia, Health and Social Care in the Community, 2013, 21 (6), pp. 665-674
dc.description.versionAccepted Manuscript (AM)
gro.facultyGriffith Health, School of Human Services and Social Work
gro.rights.copyrightThis is the peer reviewed version of the following article: Sav, A; Kendall, E; McMillan, SS; Kelly, F; Whitty, JA; King, MA; Wheeler, AJ, 'You say treatment, I say hard work': treatment burden among people with chronic illness and their carers in Australia, Health and Social Care in the Community, 2013, 21 (6), pp. 665-674, which has been published in final form at https://doi.org/10.1111/hsc.12052. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited.
gro.date.issued2013
gro.hasfulltextFull Text
gro.griffith.authorKendall, Elizabeth
gro.griffith.authorKing, Michelle A.
gro.griffith.authorMcMillan, Sara S.
gro.griffith.authorWheeler, Amanda
gro.griffith.authorKelly, Fiona S.


Files in this item

This item appears in the following Collection(s)

  • Journal articles
    Contains articles published by Griffith authors in scholarly journals.

Show simple item record