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  • Dementia and its influence on quality of life and what it means to be valued: Family members perceptions

    Author(s)
    Moyle, Wendy
    Murfield, Jenny
    Venturto, Lorraine
    Griffiths, Susan
    Grimbeek, Peter
    McAllister, Margaret
    Marshall, Jenni
    Griffith University Author(s)
    Moyle, Wendy
    Year published
    2014
    Metadata
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    Abstract
    This pragmatic, exploratory qualitative study, as part of a larger funded research project, sought to explore families' perspectives on what it means to value a person with dementia and how this value might influence the quality of life of people with dementia. In-depth interviews were conducted with 20 family members who used one long-term care service provider in Australia. Families described the factors influencing a positive quality of life for the person with dementia as being related to the environment and, in particular, to the resident's room, supportive staff and individualised care that valued the person's life ...
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    This pragmatic, exploratory qualitative study, as part of a larger funded research project, sought to explore families' perspectives on what it means to value a person with dementia and how this value might influence the quality of life of people with dementia. In-depth interviews were conducted with 20 family members who used one long-term care service provider in Australia. Families described the factors influencing a positive quality of life for the person with dementia as being related to the environment and, in particular, to the resident's room, supportive staff and individualised care that valued the person's life experience. Family also reported a negative impact on quality of life when staff and the care facility neglected to provide an individualised approach. This study highlights the importance of demonstrating the value of the person with dementia, the family role and partnerships of care.
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    Journal Title
    Dementia
    Volume
    13
    Issue
    3
    DOI
    https://doi.org/10.1177/1471301212474147
    Subject
    Clinical sciences
    Nursing
    Aged care nursing
    Cognitive and computational psychology
    Publication URI
    http://hdl.handle.net/10072/55323
    Collection
    • Journal articles

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