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dc.contributor.authorBishop, J
dc.contributor.authorSunderland, N
dc.date.accessioned2017-05-03T15:41:48Z
dc.date.available2017-05-03T15:41:48Z
dc.date.issued2013
dc.date.modified2014-07-14T05:54:00Z
dc.identifier.issn2157-1740
dc.identifier.doi10.1353/nib.2013.0067
dc.identifier.urihttp://hdl.handle.net/10072/61276
dc.description.abstractWhat is it like to live with the label "Disability?" NIB editorial staff and narrative symposium editors, Jeffery Bishop and Naomi Sunderland developed a call for stories, which was sent to several list serves, shared with the 1000 Voices Project community and posted on Narrative Inquiry in Bioethics' website. The request for personal stories from people who identify with the label "disabled" asked them to: consider how the label "disability" interacts with other aspects of their life in health care settings; does the term "disability" reflect their actual embodied experiences of impairment or does it fail to do justice to their particular experience of impairment; describe the kind of experiences that are possible because of the impairment(s); discuss how the label has affected their "authentic voice"; and many other concepts about what effects the label has on their lives. These authors share deeply personal experiences that will help readers understand their world, challenges, and joys. Thirteen stories are found in the print version of the journal and an additional five supplemental stories are published online only through Project MUSE. The stories are complemented by four commentary articles by Elizabeth R. Schiltz; Lorna Hallahan; Nicole Matthews, Kathleen Ellem, and Lesley Chenoweth; and Jeffery Bishop, Rachelle Barina, and Devan Stahl. These scholars come from the disciplines of law, social work, media studies, medicine, and bioethics from Australia and the United States. Together, the symposium's storytellers and commentators offer striking and informative insights into the everydayness of living with disabilities.
dc.description.peerreviewedYes
dc.description.publicationstatusYes
dc.format.extent134065 bytes
dc.format.mimetypeapplication/pdf
dc.languageeng
dc.publisherJohn Hopkins University Press
dc.publisher.placeUnited States
dc.relation.ispartofstudentpublicationN
dc.relation.ispartofpagefrom183
dc.relation.ispartofpageto186
dc.relation.ispartofissue3
dc.relation.ispartofjournalNarrative Inquiry in Bioethics
dc.relation.ispartofvolume3
dc.rights.retentionY
dc.subject.fieldofresearchStudies in Creative Arts and Writing not elsewhere classified
dc.subject.fieldofresearchClinical Social Work Practice
dc.subject.fieldofresearchcode199999
dc.subject.fieldofresearchcode160701
dc.titleLiving with the label "Disability": Personal narrative as a resource for responsive and informed practice in Biomedicine and Bioethics
dc.typeJournal article
dc.type.descriptionC1 - Articles
dc.type.codeC - Journal Articles
gro.rights.copyright© 2013 The Johns Hopkins University Press. This article first appeared in Narrative Inquiry in Bioethics, [Volume, Issue, Month, Year, pages]. Reprinted with permission by The Johns Hopkins University Press.
gro.hasfulltextFull Text
gro.griffith.authorSunderland, Naomi L.


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