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  • Primary caregivers’ awareness and perception of early-onset dementia conditions in adolescents and young and middle- aged adults with Down syndrome

    Author(s)
    Lin, Jin-Ding
    Chen, Wen-Xiu
    Hsu, Shang-Wei
    Lin, Lan-Ping
    Lin, Fu-Gong
    Tang, Chi-Chieh
    Wu, Jia-Ling
    Chu, Cordia
    Chou, Yu-Ching
    Griffith University Author(s)
    Chu, Cordia M.
    Year published
    2014
    Metadata
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    Abstract
    The present study aims to investigate the onset of dementia conditions using the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID) scale and to identify the possible factors associated with DSQIID scores in people with Down syndrome (DS). The study population was recruited from the voluntary registry members of the Republic of China Foundation for Persons with Down syndrome; primary caregivers provided DSQIID information on 196 adolescents and adults with DS (aged15-48years) who were entered into the database and analyzed using SPSS 20.0 software. The results described the distribution ...
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    The present study aims to investigate the onset of dementia conditions using the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID) scale and to identify the possible factors associated with DSQIID scores in people with Down syndrome (DS). The study population was recruited from the voluntary registry members of the Republic of China Foundation for Persons with Down syndrome; primary caregivers provided DSQIID information on 196 adolescents and adults with DS (aged15-48years) who were entered into the database and analyzed using SPSS 20.0 software. The results described the distribution of early-onset dementia conditions in 53 adolescents and adults with DS, and 2.6% of the subjects with DS had possible dementia DSQIIDscore320). Univariate analyses found that older age (p = 0.001) and comorbid conditions (p = .003) were significantly associated with DSQIID scores. Older subjects were more likely to have higher DSQIID scores than were younger age groups after ANOVA and Scheffe'stests. Lastly, a multiple linear regression analysis revealed that age (p < 0.01), severe disability level (p < 0.05) and comorbid condition (p < 0.01) significantly explained 13% of the variation in DSQIID scores after adjusting for the factors of gender, education level and multiple disabilities in a dolescents and adults with DS. The study highlights that future research should focus on the ccurrence of dementia in people with DS and on identifying its influencing factors based on sound measurements, to initiate appropriate healthy aging policies for this group of people.
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    Journal Title
    Research in Developmental Disabilities
    Volume
    35
    Issue
    9
    DOI
    https://doi.org/10.1016/j.ridd.2014.04.026
    Subject
    People with disability
    Specialist studies in education
    Publication URI
    http://hdl.handle.net/10072/62454
    Collection
    • Journal articles

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