Normalcy: An important focus for individuals diagnosed with a haematological malignancy

Abstract

This article presents findings that highlight the significance of the tension between the focus on disease and treatment verses the focus on re-engaging with life for individuals facing the crisis of being diagnosed with a haematology malignancy. The findings are from a study on survivorship conducted throughout Queensland, Australia. The research was based on a qualitative design involving a series of open-ended interviews (n = 50) and one focus group which were recorded, transcribed verbatim, and then coded and thematically analysed for the research. The findings affirm the importance of a sense of normalcy and the process of re-positioning the central role of the disease in the lives of those diagnosed with a haematological cancer. There are key points when a focus on treatment and disease is unavoidable. However, after treatment the need for supportive care and the consequent reminder of the disease and treatment can "taper off." The challenge is to know when to provide support and when to respect the individual's need to let go of a focus on issues associated with treatment and the disease.