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  • Informal Caregivers of Palliative Oncohematologic Patients: The Invisible Guests: An Exhaustive Review of the Literature Available

    Author(s)
    Uceda-Torres, Maria Elena
    Rodriguez-Rodriguez, Juan Nicolas
    Alvarado-Gomez, Francisco
    Sanchez-Ramos, Jose-Luis
    McGrath, Pamela
    Griffith University Author(s)
    McGrath, Pamela D.
    Year published
    2016
    Metadata
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    Abstract
    Informal caregivers are crucial members of the teams that care for palliative patients with cancer, including those with oncohematological malignancies. Publications concerning specific aspects of this latter group of carers are limited. This literature review indicates that palliative oncohematologic patients’ caregivers do not differ from those of patients with solid tumors in ethical and related problems. However, there are specific problems for the former group with regard to negotiating the curative system, which are experienced as distressing, often without support from the health system and without offers of the ...
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    Informal caregivers are crucial members of the teams that care for palliative patients with cancer, including those with oncohematological malignancies. Publications concerning specific aspects of this latter group of carers are limited. This literature review indicates that palliative oncohematologic patients’ caregivers do not differ from those of patients with solid tumors in ethical and related problems. However, there are specific problems for the former group with regard to negotiating the curative system, which are experienced as distressing, often without support from the health system and without offers of the possibility of being referred to palliative teams that they would have valued as very positive. Although this tendency seems to be changing, there is still considerable work to be done to improve the role of these carers.
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    Journal Title
    American Journal of Hospice & Palliative Medicine
    Volume
    33
    Issue
    7
    DOI
    https://doi.org/10.1177/1049909115582007
    Subject
    Clinical Sciences not elsewhere classified
    Nursing
    Publication URI
    http://hdl.handle.net/10072/99283
    Collection
    • Journal articles

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