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dc.contributor.authorNund, Rebecca L.
dc.contributor.authorScarinci, Nerina A.
dc.contributor.authorCartmill, Bena
dc.contributor.authorWard, Elizabeth C.
dc.contributor.authorKuipers, Pim
dc.contributor.authorPorceddu, Sandro V.
dc.date.accessioned2018-11-05T01:06:30Z
dc.date.available2018-11-05T01:06:30Z
dc.date.issued2016
dc.identifier.issn1464-5165en_US
dc.identifier.doi10.3109/09638288.2015.1046563en_US
dc.identifier.urihttp://hdl.handle.net/10072/99893
dc.description.abstractPurpose: Third-party disability pertains to the consequences of a person’s impairment which impacts on the functioning and ability of their family members or significant others. With the emergence of research demonstrating the pervasive effects of dysphagia following head and neck cancer (HNC) on the carer, the aim of this study was to identify the International Classification of Functioning, Disability and Health (ICF) domains and categories that describe the third-party disability of carers of people with dysphagia following HNC. Method: Twelve carers of people with dysphagia following HNC participated in individual semi-structured, in-depth interviews. Categories and sub-categories identified from the qualitative analysis were mapped to the ICF using the established linking rules. Results: The majority of the categories and sub-categories from the qualitative analysis were successfully linked to the ICF with most linking to the Activities and Participation component. A number of contextual factors were also identified as impacting on the functioning of carers. Conclusions: The ICF can be successfully used to describe the third-party disability in carers of people with dysphagia following HNC management. This information could be used by clinicians, researchers and policy makers to help establish evidence-based guidelines that include carers in the assessment and management of dysphagia associated with HNC. Implications for Rehabilitation Clinical levels of distress and reduced quality of life have been associated with caring for a person with dysphagia following head and neck cancer. The flow-on effects of dysphagia experienced by a carer or close family member can be understood as a third-party disability, which impacts on their functioning, activities and participation in the context of the environment and personal factors. Using the ICF to describe the indirect effects of dysphagia on the carer may help to guide the assessment and support of this population, and advocate for the inclusion of the concerns of the carer in dysphagia management.en_US
dc.description.peerreviewedYesen_US
dc.languageEnglishen_US
dc.publisherTaylor & Francisen_US
dc.relation.ispartofpagefrom462en_US
dc.relation.ispartofpageto471en_US
dc.relation.ispartofissue5en_US
dc.relation.ispartofjournalDisability and Rehabilitationen_US
dc.relation.ispartofvolume38en_US
dc.subject.fieldofresearchSocial Work not elsewhere classifieden_US
dc.subject.fieldofresearchcode160799en_US
dc.titleThird-party disability in carers of people with dysphagia following non-surgical management for head and neck canceren_US
dc.typeJournal articleen_US
dc.type.descriptionC1 - Peer Reviewed (HERDC)en_US
dc.type.codeC - Journal Articlesen_US
gro.hasfulltextNo Full Text


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