Perspectives of family-centred care at the end of life during the COVID-19 pandemic: A qualitative descriptive study

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Bloomer, Melissa J
Yuen, Eva
Williams, Ruth
Bouchoucha, Stephane
Poon, Peter
Runacres, Fiona
Mooney, Christine
Hutchinson, Alison M
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2023
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Abstract

Aim To explore nurses' and family members' perspectives of family care at the end of life, during restricted visitation associated with the COVID-19 pandemic.

Background To minimise the transmission of COVID-19, stringent infection prevention and control measures resulted in restricted hospital access for non-essential workers and visitors, creating challenges for the provision of family-centred care at the end of life.

Design Qualitative descriptive approach based on naturalistic inquiry.

Methods At a large public hospital in Melbourne, Australia, individual semi-structured interviews were undertaken with 15 registered nurses who cared for patients who died during restricted visitation associated with the COVID-19 pandemic, and 21 bereaved family members. COREQ guidelines informed analysis and reporting.

Results Five themes developed from the data: (i) impact of visitor restrictions, which describes uncertain, ambiguous and arbitrary rules, onerous and inconsistent requirements; (ii) nurse-family communication; (iii) family-centred care and interrupted connections; (iv) well-being and negative emotions; and (v) suggestions for a better way, such as moving away from the black and whiteness of the rules, prioritising communication, compassion and advocacy.

Conclusions Negative consequences for communication and the patient-family connection at the end of life were felt deeply. The evolving COVID-19 rules that were frequently revised and applied at short notice, and the subsequent consequences for clinical practices and care were felt deeply.

Relevance to Clinical Practice Technology-facilitated communication, innovation and increased resources must be prioritised to overcome the challenges described in this study. A family-centred approach to care and emphasising the patient-family connection at the end of life is fundamental to minimising trauma and distress associated with future public health emergencies.

Patient or Public Contribution Bereaved family members contributed their first-hand experience. Members of the health service's patient experience team ensured the research was conducted in accordance with health service guidelines for patient and public contribution.

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Journal of Clinical Nursing

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© 2023 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made.

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This publication has been entered in Griffith Research Online as an advanced online version.

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Health services and systems

Nursing

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Bloomer, MJ; Yuen, E; Williams, R; Bouchoucha, S; Poon, P; Runacres, F; Mooney, C; Hutchinson, AM, Perspectives of family-centred care at the end of life during the COVID-19 pandemic: A qualitative descriptive study, Journal of Clinical Nursing, 2023

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