Prostate Cancer Survivorship Essentials Framework: Guidelines for Practitioners

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Dunn, Jeff
Green, Anna
Ralph, Nicholas
Newton, Robert U
Kneebone, Andrew
Frydenberg, Mark
Chambers, Suzanne K
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2020
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Abstract

OBJECTIVE: To develop contemporary and inclusive prostate cancer survivorship guidelines for the Australian setting. SUBJECTS/PATIENTS AND METHODS: A four round iterative Policy Delphi was utilised with a 47-member expert panel that included leaders from key Australian and New Zealand clinical and community groups and consumers from diverse backgrounds including LGBTQIA, regional, rural and urban settings. The first three rounds were undertaken using an online survey (94% to 96% response) followed by a fourth final face-to-face panel meeting. Descriptors for men's current prostate cancer survivorship experience were generated along with survivorship elements that were assessed for importance and feasibility. From these, survivorship domains were generated for consideration. RESULTS: Six key descriptors for men's current prostate cancer survivorship experience were: dealing with side effects; challenging; medically focused; uncoordinated; unmet needs; anxious. In all 26 survivorship elements were identified within six domains: Health Promotion and Advocacy; Shared Management; Vigilance; Personal Agency; Care Coordination and Evidence-based Survivorship Interventions. Consensus was high for all domains as being essential. All elements were rated high on importance but consensus was mixed for feasibility. Seven priorities were derived for immediate action. CONCLUSION: The policy Delphi allowed a uniquely inclusive expert clinical and community group to develop prostate cancer survivorship domains that extend beyond traditional health care parameters. These domains provide guidance for policy makers, clinicians, community and consumers on what is essential for step change in prostate cancer survivorship outcomes.

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BJU International

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© 2020 BJU International. This is the peer reviewed version of the following article: Prostate Cancer Survivorship Essentials Framework: Guidelines for Practitioners, BJU International, 2020, which has been published in final form at https://doi.org/10.1111/bju.15159. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Self-Archiving (http://olabout.wiley.com/WileyCDA/Section/id-828039.html)

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Subject

Clinical sciences

Policy Delphi

implementation

prostate cancer

quality of life

survivorship

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Dunn, J; Green, A; Ralph, N; Newton, RU; Kneebone, A; Frydenberg, M; Chambers, SK, Prostate Cancer Survivorship Essentials Framework: Guidelines for Practitioners, BJU International, 2020

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