Journeys with Chronic Pain: Acquiring Stigma Along The Way

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Nielsen, Mandy
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McKenzie, Heather

Quintner, John

Bendelow, Gillian

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2012
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Abstract

Chronic pain has been identified as a major and underestimated health care problem, with extensive individual, social and economic ramifications. Recognition of pain as a multidimensional experience has contributed to the biopsychosocial model of health gaining substantial recognition in the pain management domain. There is evidence, however, that the ‘promise’ of the multidimensional approach has not been realised in the daily lives of people with chronic pain. A relationship between stigma and chronic pain has recently begun to emerge in the qualitative literature concerning the lived experience of chronic pain. Drawing on a narrative study with twenty people with chronic pain, this chapter will use the conceptual framework outlined by Link and Phelan to illustrate the social processes involved in the stigma acquired by people in their journey with chronic pain. Stigmatisation has significant consequences for people living with chronic pain which cannot be addressed at an individual cognitive level. This adds salience to the author’s contention that the social dimension of chronic pain needs to be further articulated and addressed at a policy and practice level, not only to ensure a more comprehensive response to chronic pain, but also to ameliorate the social suffering experienced by people living with chronic pain in our community.

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At the Edge of Being: The Aporia of Pain

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Pain

Social Science

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Nielsen, M, Journeys with Chronic Pain: Acquiring Stigma Along The Way, At the Edge of Being: The Aporia of Pain, 2020, pp. 83-97

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