Family support needs at the end of life in critical care: A retrospective descriptive study

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Bloomer, Melissa
Runacres, Fiona
Poon, Peter
Hutchinson, Alison
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2022
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Sydney, Australia

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Introduction: Despite clear evidence that family care and support are essential in critical care, little is known about how family support needs are assessed and facilitated at the end of life Objective: To explore how next-of-kin support needs at the end of life are assessed and/or facilitated. Methods: A retrospective medical record audit of 50 adult patients who died in a Melbourne metropolitan intensive care unit in 2019. Results: Next-of-kin were documented in 96% (n=48) of cases, with the majority being the decedent’s spouse (46.0%, n=23) followed by another relative (44.0%, n=22). A Goals of Care Summary was completed in 74.0% (n=37) of cases, with evidence of next-of-kin consultation in 75.7% (n=28) of these cases. Where a Goals of Care Summary was completed, 32.4% (n=12) of patients were for palliative/terminal care. Formal family meetings were held in 90.0% (n=45) of cases to communicate prognosis, plan care and facilitate decision-making, and in some cases to resolve family disagreement. There was evidence of nurse assessment of family needs and preferences in 60.0% (n=30) of cases, with social and pastoral care workers involved in 68.0% (n=34) and 10% (n=5) of cases respectively, and specialist palliative care involved in only 6.0% (n=3) cases. In addition to immediate support offered by bedside nurses, family requests for cultural/religious practices were supported after patient death in 34.0% (n=17) of cases. Eleven (22.0%) next-of-kin received bereavement support. Conclusion: Assessing family support needs at the end of life, including their cultural and religious needs is essential to providing optimal end-of-life care. Whilst these data demonstrate a high rate of family meetings, nurse assessment of family needs including a cultural assessment, and routine referral to multidisciplinary supports including palliative care, social work and pastoral care should be considered as part of routine care when patients are deemed for palliative or terminal care.

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Australian Critical Care

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35

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Supplement 1

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Subject

Family care

Palliative care

Intensive care

Science & Technology

Life Sciences & Biomedicine

Critical Care Medicine

Nursing

General & Internal Medicine

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Bloomer, M; Runacres, F; Poon, P; Hutchinson, A, Family support needs at the end of life in critical care: A retrospective descriptive study, Australian Critical Care, 2022, 35 (Supplement 1), pp. S17-S17