Quality predictors of parental satisfaction after birth of infants with life-limiting conditions
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Kain, Victoria J
Mendes, Joana
Carter, Brian
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Waikiki Beach, HI, USA
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Abstract
Objective: This presentation reports parental satisfaction with care received in the context of a life-limiting fetal diagnosis and subsequent birth. Study Design: Survey methods were utilized to embed the Quality Indicators and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: “The Voice of Parents”. Result: The web-based survey had a final sample of n=405 parent responders. Overall, parents reported satisfaction with care (80.2 percent; n=393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from a 41-item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported. The model ascertains the importance of compassion, unhurried providerpatient communication and bereavement interventions. Conclusion: This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life-limiting condition. Attendees will have the opportunity to see the importance of delivering quality care and how it interfaces with parental satisfaction. The evidence will allow participants to improve parental experiences in the context of devastating loss and initiate changes in clinical practices to enhance how services are delivered to families.
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Neonatal Network
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36
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4
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Clinical sciences
Nursing
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Wool, C; Kain, VJ; Mendes, J; Carter, B, Quality predictors of parental satisfaction after birth of infants with life-limiting conditions, Neonatal Network, 2017, 36 (4), pp. e13-e13