Provision of end-of-life care in primary care: a survey of issues and outcomes in the Australian context

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Ding, Jinfeng
Johnson, Claire E
Saunders, Christobel
Licqurish, Sharon
Chua, David
Mitchell, Geoffrey
Cook, Angus
Griffith University Author(s)
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2022
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Abstract

Objectives To describe general practitioners' (GPs) involvement in end-of-life care, continuity and outcomes of care, and reported management challenges in the Australian context. Methods Sixty-three GPs across three Australian states participated in a follow-up survey to report on care provided for decedents in the last year life using a clinic-based data collection process. The study was conducted between September 2018 and August 2019. Results Approximately one-third of GPs had received formal palliative care training. Practitioners considered themselves as either the primary care coordinator (53.2% of reported patients) or part of the management team (40.4% of reported patients) in the final year of care. In the last week of life, patients frequently experienced reduced appetite (80.6%), fatigue (77.9%) and psychological problems (44.9%), with GPs reporting that the alleviation of these symptoms were less than optimal. Practitioners were highly involved in end-of-life care (eg, home visits, consultations via telephone and family meetings), and perceived higher levels of satisfaction with communication with palliative care services than other external services. For one-third of patients, GPs reported that the last year of care could potentially have been improved. Conclusion There are continuing needs for integration of palliative care training into medical education and reforms of healthcare systems to further support GPs' involvement in end-of-life care. Further, more extensive collection of clinical data is needed to evaluate and support primary care management of end-of-life patients in general practice.

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BMJ Open

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12

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1

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© Author(s) (or their employer(s)) 2022. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.

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Palliative care

Science & Technology

Life Sciences & Biomedicine

Medicine, General & Internal

General & Internal Medicine

primary care

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Ding, J; Johnson, CE; Saunders, C; Licqurish, S; Chua, D; Mitchell, G; Cook, A, Provision of end-of-life care in primary care: a survey of issues and outcomes in the Australian context, BMJ Open, 2022, 12 (1), pp. e053535

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