The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study

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Casey, Dympna
Gallagher, Niamh
Devane, Declan
Woods, Bob
Murphy, Kathy
Smyth, Siobhan
Newell, John
Murphy, Andrew W
Clarke, Charlotte
Foley, Tony
Timmons, Fergus
Droes, Rose-Marie
O'Halloran, Martin
Windle, Gill
Domegan, Christine
et al.
Griffith University Author(s)
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2020
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Abstract

Background: A dementia diagnosis can prevent people from participating in society, leading to a further decline in cognitive, social and physical health. However, it may be possible for people with dementia to continue to live meaningful lives and continue to participate actively in society if a supportive psychosocial environment exists. Resilience theory, which focuses on strengthening personal attributes and external assets in the face of serious challenges, may provide a scaffold on which an inclusive multifaceted psychosocial supportive environment can be built. This protocol paper describes a study to determine the feasibility of conducting a multifaceted complex resilience building psychosocial intervention for people with dementia and their caregivers living in the community. Methods: This is a non-randomised feasibility study. Ten participants with dementia and their primary caregivers living in the community will be recruited and receive the CREST intervention. The intervention provides (a) a 7-week cognitive stimulation programme followed by an 8-week physical exercise programme for people with dementia and (b) a 6-week educational programme for caregivers. Members of the wider community will be invited to a dementia awareness programme and GP practices to a dementia training workshop. Trained professionals will deliver all intervention components. Outcomes will assess the feasibility and acceptability of all study processes. The feasibility and acceptability of a range of outcomes to be collected in a future definitive trial, including economic measurements, will also be explored. Finally, social marketing will be used to map a route toward stigma change in dementia for use in a subsequent trial. Quantitative feasibility outcome assessments will be completed at baseline and after completion of the 15-week intervention while qualitative data will be collected at recruitment, baseline, during and post-intervention delivery. Conclusion: This feasibility study will provide evidence regarding the feasibility and acceptability of a comprehensive multifaceted psychosocial intervention programme for people with dementia and their caregivers (CREST). The results will be used to inform the development and implementation of a subsequent RCT, should the findings support feasibility. Trial registration: ISRCTN25294519 Retrospectively registered 07.10.2019

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Pilot and Feasibility Studies

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6

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1

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© The Author(s). 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made.

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Social marketing

Health and community services

Science & Technology

Life Sciences & Biomedicine

Medicine, Research & Experimental

Research & Experimental Medicine

People with dementia

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Casey, D; Gallagher, N; Devane, D; Woods, B; Murphy, K; Smyth, S; Newell, J; Murphy, AW; Clarke, C; Foley, T; Timmons, F; Droes, R-M; O'Halloran, M; Windle, G; Domegan, C; et al., The feasibility of a Comprehensive Resilience-building psychosocial Intervention (CREST) for people with dementia in the community: protocol for a non-randomised feasibility study, Pilot and Feasibility Studies, 2020, 6 (1), pp. 177

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