Endometriosis-associated Symptoms and Diagnostic Delay: An Online Survey

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Moradi, M
Niazi, A
Parker, M
Sneddon, A
Lopez, V
Ellwood, D
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2022
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Abstract

Background & Objective: The aim of this study was to determine the endometriosis-associated symptoms and diagnostic delay through an online survey. Materials & Methods: A cross-sectional study was conducted in Australia using an online web-based survey. All data were entered into and analyzed using the STATA software (version 14.1). A total of 903 respondents completed an online survey from September 2013 to October 2015. Results: Out of 903, 71.10% were Australians and 28.90% were Non-Australian, with a self-reported diagnosis of endometriosis confirmed by surgery. Out of the participants, 86.5% completed the online survey. Delay in diagnosis was 8.1±6.2 years. There was no difference in the age range (P = 0.35), mean age of onset of the first symptoms (P = 0.93), and delay in diagnosis (P = 0.11) between both groups. Most common endometriosis-related symptoms that all respondents had experienced in their lifetime were period pain (98.1%), fatigue (94%), bloating (90.7%), ovulation pain (88.7%), pelvic pain (87.3%), pain during and before/after sexual activity (82.7%), and heavy bleeding (82.2%) .Treatments used by affected women included: pain killers (96%), hormonal medication (84.7%), surgical treatments (84.5%), and delayed fertility (37.1%). Conclusion: Vast similarities in demographics and endometriosis-associated symptoms among the Australian and non-Australian women with endometriosis support the universality of the disease characteristics. Delay in diagnosis of endometriosis is a problem and the reasons for delayed diagnosis must be understood to try to shorten this delay. Besides pain, patients with endometriosis suffer from a variety of other symptoms; hence, any treatment must take into account the most prominent symptoms.

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Journal of Obstetrics, Gynecology and Cancer Research

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7

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6

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© 2022, This is an original open-access article distributed under the terms of the Creative Commons Attribution-noncommercial 4.0 International License which permits copy and redistribution of the material just in noncommercial usages with proper citation.

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Obstetrics and gynaecology

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Moradi, M; Niazi, A; Parker, M; Sneddon, A; Lopez, V; Ellwood, D, Endometriosis-associated Symptoms and Diagnostic Delay: An Online Survey, Journal of Obstetrics, Gynecology and Cancer Research, 2022, 7 (6), pp. 479-488

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