Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia

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Reinhardt, Anne
Mardon, Amelia K
Eitze, Sarah
Adler, Hannah
Howe, Danielle
O’Shea, Michelle
Armour, Mike
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2025
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Abstract

Endometriosis affects 5–14% of women and those presumed female at birth (PFAB), yet public understanding remains limited. In an online survey of 427 Australians, diagnosed individuals had better knowledge about endometriosis than those at risk but undiagnosed. In detail, at-risk individuals underestimated prevalence, consequences, and diagnostic pathways. Targeted education may improve symptom recognition and healthcare engagement, supporting earlier diagnosis and better care.

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npj Women's Health

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3

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© The Author(s) 2025. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/.

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Reinhardt, A; Mardon, AK; Eitze, S; Adler, H; Howe, D; O’Shea, M; Armour, M, Understanding endometriosis knowledge among diagnosed and symptomatically at-risk individuals in Australia, npj Women's Health, 3, pp. 46

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