Health data linkage research in Australia remains challenging
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Johnson, David W
Hawley, Carmel
Pascoe, Elaine
Fahim, Magid
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Abstract
Data linkage is a valuable technique for uniting information from multiple sources that relates to the same person, place, family or event. Despite its value, establishing such linkages in Australia remains challenging. Existing policies are a missed opportunity for research and innovation and engender a negative attitude among researchers when considering data linkage as a research means. Greater leadership from the Population Health Research Network and cooperation from data custodians and Human Research Ethics Committees are necessary to access optimally Australia’s enormous data potential.
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Internal Medicine Journal
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49
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4
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Cardiovascular medicine and haematology
Clinical sciences
Health services and systems
Public health
Science & Technology
Life Sciences & Biomedicine
Medicine, General & Internal
General & Internal Medicine
data linkage
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Palamuthusingam, D; Johnson, DW; Hawley, C; Pascoe, E; Fahim, M, Health data linkage research in Australia remains challenging, Internal Medicine Journal, 2019, 49 (4), pp. 539-544