Development and validation of a questionnaire to assess quality of life in Australian adults with type 1 diabetes: a pilot psychometric study
File version
Version of Record (VoR)
Author(s)
Knight-Agarwal, Catherine R
Saleh, M Abu
Davoren, Peter
Jani, Rati
Griffith University Author(s)
Primary Supervisor
Other Supervisors
Editor(s)
Date
Size
File type(s)
Location
Abstract
The burdensome nature of managing type 1 diabetes (T1D) can influence psychological well-being and reduce quality of life (QoL). This pilot study aims to develop and validate a new questionnaire identifying factors impacting the QoL of Australian adults with T1D. Questionnaire development included literature review, pre-testing, semi-structured interviews, expert evaluation, and pilot testing. Questionnaire validation involved an exploratory factor analysis (EFA) to identify the initial factor structure. Confirmatory factor analysis (CFA) determined domain validity. Further statistical analysis included convergent, relative, predictive validity, and reliability. The initial questionnaire had 28-items relating to physical, psychological, social, and dietary well-being. CFA revealed ‘psychological’ and ‘social’ items underpinned the four questionnaire domains. The four domains identified were: (1) ‘Coping and Adjusting’ (4-items), (2) ‘Fear and Worry’ (4-items), (3) ‘Loss and Grief’ (3-items), and (4) ‘Social Impact’ (4-items). Significant correlations were revealed between ‘Coping and Adjusting’ and HbA1c (rs = − 0.44, p < 0.01) and ‘Social Impact’ and HbA1c (rs = 0.13, p < 0.01) respectively. Acceptable convergent validity and reliability (test–retest, internal consistency) was observed in all domains. Our study concludes that dietary well-being does not independently impact QoL but is interwoven with psychological factors.
Journal Title
Scientific Reports
Conference Title
Book Title
Edition
Volume
15
Issue
Thesis Type
Degree Program
School
Publisher link
Patent number
Funder(s)
Grant identifier(s)
Rights Statement
Rights Statement
© The Author(s) 2025. Open Access This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc-nd/4.0/.
Item Access Status
Note
Access the data
Related item(s)
Subject
Endocrinology
Epidemiology
Persistent link to this record
Citation
Paul, J; Knight-Agarwal, CR; Saleh, MA; Davoren, P; Jani, R, Development and validation of a questionnaire to assess quality of life in Australian adults with type 1 diabetes: a pilot psychometric study, Scientific Reports, 15, pp. 22462