Introduction: There is a growing body of research into end-of-life care (EOLC) both nationally and internationally. However, researchers tend to focus on clinicians’ perception of providing EOLC with limited research exploring the experience of families. Positive EOLC experiences may lessen family’s level of distress and risk of experiencing complicated/ prolonged grief. Research exploring families experience with EOLC is required to inform practice improvements.

Objectives: To explore families’ perspective of EOLC in Intensive Care. Methods: A convenience sample of 20 family members of patients who received EOLC in ICU were recruited. Structured interviews using the 15-item modified CEASAR survey was undertaken to assess families’ satisfaction and experience with aspects of EOLC. Participants were given an opportunity to elaborate on their experiences of EOLC and provide feedback for improvement. Mean and standard deviation were calculated for each survey item. Through inductive thematic analysis, qualitative data from open ended questions were coded and recoded to identify emerging themes.

Results: Overall families were very satisfied (mean 4.5; SD 0.8) with the support provided in ICU. Family members described the experience of losing a loved one as inherently difficult however acknowledged the positive impact of the care provided. Highest level of satisfaction pertained to attentiveness of ICU clinicians, the quality of communication with ICU nurses and the maintenance of patient dignity. Suggested areas for improvement included more timely access to medical staff, clear and concise communication around diagnosis, and improved facilities for families.

Conclusion(s): Whilst family were very satisfied overall with their experiences of EOLC, areas for practice improvement were identified. The findings of this study can inform strategies to enhance a family centred approach to EOLC care.