Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation

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Petkovic, Jennifer
Riddle, Alison
Akl, Elie A
Khabsa, Joanne
Lytvyn, Lyubov
Atwere, Pearl
Campbell, Pauline
Chalkidou, Kalipso
Chang, Stephanie M
Crowe, Sally
Dans, Leonila
El Jardali, Fadi
Ghersi, Davina
Graham, Ian D
Nonino, Francesco
et al.
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2020
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https://creativecommons.org/licenses/by/4.0/
Abstract

BACKGROUND: Stakeholder engagement has become widely accepted as a necessary component of guideline development and implementation. While frameworks for developing guidelines express the need for those potentially affected by guideline recommendations to be involved in their development, there is a lack of consensus on how this should be done in practice. Further, there is a lack of guidance on how to equitably and meaningfully engage multiple stakeholders. We aim to develop guidance for the meaningful and equitable engagement of multiple stakeholders in guideline development and implementation. METHODS: This will be a multi-stage project. The first stage is to conduct a series of four systematic reviews. These will (1) describe existing guidance and methods for stakeholder engagement in guideline development and implementation, (2) characterize barriers and facilitators to stakeholder engagement in guideline development and implementation, (3) explore the impact of stakeholder engagement on guideline development and implementation, and (4) identify issues related to conflicts of interest when engaging multiple stakeholders in guideline development and implementation. DISCUSSION: We will collaborate with our multiple and diverse stakeholders to develop guidance for multi-stakeholder engagement in guideline development and implementation. We will use the results of the systematic reviews to develop a candidate list of draft guidance recommendations and will seek broad feedback on the draft guidance via an online survey of guideline developers and external stakeholders. An invited group of representatives from all stakeholder groups will discuss the results of the survey at a consensus meeting which will inform the development of the final guidance papers. Our overall goal is to improve the development of guidelines through meaningful and equitable multi-stakeholder engagement, and subsequently to improve health outcomes and reduce inequities in health.

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Systematic Reviews
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9
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1
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© The Author(s). 2020 Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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Biomedical and clinical sciences
Science & Technology
Life Sciences & Biomedicine
Medicine, General & Internal
General & Internal Medicine
Guidelines
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Petkovic, J; Riddle, A; Akl, EA; Khabsa, J; Lytvyn, L; Atwere, P; Campbell, P; Chalkidou, K; Chang, SM; Crowe, S; Dans, L; El Jardali, F; Ghersi, D; Graham, ID; Grant, S; Greer-Smith, R; Guise, J-M; Hazlewood, G; Jull, J; Katikireddi, SV; Langlois, E; Lyddiatt, A; Maxwell, L; Morley, R; Mustafa, RA; Nonino, F; et al., Protocol for the development of guidance for stakeholder engagement in health and healthcare guideline development and implementation, Systematic Reviews, 2020, 9 (1), pp. 21